Still up with Abby. Hopefully will get some sleep in a few minutes.
They now have Abby on morphine, Ativan and Fentanyl. They have upped her morphine significantly. She's as high as Woodstock hippie, and finally starting to settle down.
The sores on her bottom and girl parts have gotten extremely raw... it's gone from agony to excruciating now. She is terrified to have to go the bathroom and hysterical when it's time to wipe.
Tomorrow, they are going to have the surgery team look at her feeding tube because they are concerned the site might be damaged beyond use. They are having a wound care specialist look at it too.
Lord willing, we will be asleep in a few minutes. We pray it will last a few hours at least. Thanks for your kind encouragement and notes all day today. You have been so kind to us.
We don't want to be self-consumed thinking only of ourselves. Don't hesitate to write if you need encouragement, advice or prayer.
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92 comments:
My kitchen in Italy, in sight of the Swiss Alps, is this morning flooded with my tears for Abby. I can't imagine how she or anyone can endure the pain you describe. And I admire the faith that enables you to bear this. God bless you. My thoughts are with you.
Almost 12 pm here in Germany.
I can't imagine what you are going through. So sorry to hear.
I am praying for sweet Abby and your family.
Jutta Bretl, Solingen, Germany
former Coconut Creek, FL resident
She is always in my prayers.
God bless Abby
and her family!
Brent and Michelle,
I too, can't imagine enduring watching my child in such pain. I have been praying for you and for Abby almost continuously. God has given you a strength beyond my imagination. I am praying that you continue to feel His presence and that He will heal the wounds that Abby is experiencing right now and rid her body of this horrific disease. You and Abby are continuing to glorify our Lord. May you experience His peace and His healing.
I am praying for your dear sweet Abby. I have a daughter the same age and my heart is just breaking for Abby. No child should suffer like this. I have a suggestion - not sure if you have asked the docs about this already - but there is a lidocaine gel that can be put on her little bottom and private parts that can numb the pain. Not sure if it would be ok for Abby's situation but worth asking about. I had to use it after I tore from giving birth and it worked really well. I pray that Abby get through this pain soon. May God bless all of you. Will continue to pray here in California.
Brent, I am so sorry. There are no words to describe how this little girl has captured all of our hearts. We are crying out to God for this little one.
Beth
It is almost 6am here in Kentucky and I am praying for you all.
Praying for you as I write... the Lord's comforting hands be upon you in these difficult hours. Praying you get sleep and that Abby gets relief.
Be blessed this Sunday morning.
God Bless,
christy
7am here in Ohio. Praying you are all settled and getting some sleep. Praying for Abby to have some relief.
Hang in there! I hope she gets some much needed rest! I will be praying that her wounds heal quickly!
Praying here in West Texas!
I wanted to share K-Love's scripture of the day with you:
Always be joyful. Never stop praying. Be thankful in all circumstances, for this is God’s will for you who belong to Christ Jesus.
~ 1 Thessalonians 5:16-18, NLT
Kathy in West TExas
Oh my gosh--poor sweet Abby.
Sending love from NC...love and many, many prayers.
CindyO
Praying for relief for Abby, then sleep for you all.
Could they catheterize her to make her more comfy? just curious.
Praying for strength, healing, and peace.
I, as many people are, are in constant prayer for Abby. When I was in college, I got a very severe yeast infection and then an allergic reaction to the medicine. I had LOTS of sores on my bottom/girl parts. I'm sure it wasn't as bad as what Abby is dealing with, but I can totally relate to what she is going through with that. It is AWFUL!!!!! I know that you have lots of doctors and people helping, but I will warn you about a UTI. Because it hurt so much to go to the bathroom, I found myself holding it longer then I should have (and I was in college and knew better). It then led to a very sever UTI. Hugs to that precious girl. I hope she gets the relief she desperatly deserves.
Praying big prayers this morning...may you all find peace in Him.
We will continue to pray for strength for you and for Abby.
Dawn
Brent and Michelle,
I don't have words for how sad I am that you all must endure another day like today. I'm praying fervently that God eases this for all of you. I can't imagine one day of the months you have gone through. Your faith is so inspiring and how it has brought you and Michelle stronger, closer together really blesses me. I'm not sure our marriage could withstand such a trial and so many pulls in the directions you have been asked to go in. Lord work in our hearts to be prepared for trials such as these.
Laying it all down with you this morning Brent and Michelle!
Love and hugs,
Jill
1 pm here in UK thinking about you constantly
My heart is breaking for precious Abby this morning. I have been following her struggles on your website for sometime. I praise God for her strength and courage, and for yours as well. Thank you for sharing such intimate details with us and encouraging others with your faith. My little girl has been sick for just 5 days with the flu and although she is being a trooper, it is hard for me as a mom to see her suffer. I can't even imagine what you must be facing day after day. I will continue to pray for Abby and you, her family. May God continue to give you what you need to get through each day.
What a brave, wise little girl. I am in awe of how you love her through this. Praying for you and Abby.
Still praying. I can't imagine the pain she is having to endure, I pray God grant the doctors wisdom as they try to figure out what the best course of action is.
I know this could sound bad depending on how you look at it - but given your eternal focus I think you'll understand - Abby's trial has caused me to be so much more ferverent in prayer than I have been in the past month or so, that while I weep for what you all are going through, I rejoice in God's mercy in igniting my prayer life again.
I got up this morning to find your updates throughout the night. Abby is in my prayers today.
Praying fervently for you all. I actually woke up a few times last night and felt led to pray for Miss Abby. You mentioned not wanting to seem self consumed...you are not at all, just very concerned about your little girl and sharing so we can all pray. We are your "family" of christians pulling together in a time of need. Please don't think you seem self consumed bc you absolutely are not. As always, praying for Abby.
My prayers for God's will to prevail and Abby's discomfort to be resolved are forthcoming. YOu and Michelle are Godsent angels for Abby!
Still praying for Abby in Huntsville, AL.
praying for sweet princess Abby this morning. Also lifting you all up as well. (and the doctors and the other riggs children...)
Bless your hearts! I am praying for Abby and her wonderful family. My heart aches for her. I hope she feels better today.
Abby is in my thoughts and prayers all the time. I think about her constantly and pray she finds some relief soon.
Waking to this horrible news. I will pray that they can find some answers today to help Abby be a little more comfortable. My mommy heart just aches for all of you. God's plan is so often hard to handle I will pray for each of you today. Prayers from Illinois.
Your faith in Our Lord is encouragement enough.
My needs are insignificant compared with Abby.
Please God lay your gentle grace on this child and on her carers.
Blessing
Love Granny
Praying.....
Bamagirl & Family
My mother is going through a very similar situation. She, however, is on her journey to heaven. I pray that Abby's situation is written quite differently. She has so much life ahead.
I pray for you daily.
My heart is BROKEN for you guys. I cannot even imagine what you are going through!
We will lift you guys up in prayer today in Sunday school!
PLEASE let us know if you need anything! Owasso isn't THAT far away from OKC!
Oh Brent....I know I always say the same thing but I do not say it loosely....we are praying.
Praying for Abby to get some comfort and praying for you two to get some rest!
What you describe is unthinkable for anyone, especially one so small. All of you are on my mind often and I will continue to pray.
You can pray for my amazing friends, Tony and Charity. They buried their full-term, stillborn daughter yesterday. The memorial service is today. Thanks.
Praying for comfort for Abby.
Tammy Kelly
I have tears in my eyes at the thought of your sweet girl in such terrible pain. We will pray for swift growth of her white cells and relief of pain; for rest and strength for you; and for the wisdom and resources the doctors need to address these problems. Praying, praying, praying...Abby is on my mind constantly.
You certainly will be in our prayers. Thank you for keeping us updated on Abby (and your family) Please know you ARE in our thoughts and prayers.
I am praying for you guys. And I know that is a cliche expression but I mean with all my heart. God be with you all, as I know He is. Tell Abby I said hi!
Dear Brent and Michelle,
I just met you through a blog, and I wanted to let you know that I will be praying for your little Abby.
I also posted your site on FB, so all my 'friends' can see it.
May the Lord bless you and give you strength and grace during this time.
Oh poor little Abby. I can't imagine how much she must be hurting, and how hard it is for you guys to see her like this. Still praying for you...sent out prayer requests to my friends and family as well.
I'm praying for your precious angel. My tears are spilling for her as we speak.
Destiny
You absolutely should not be worried that people think you're "self-consumed," "negative," or anything else that is critical. There's not a whole lot that's worse that what your baby girl is going through. It's right up there with some of the horrors in third-world countries, and I'm SUPER-THANKFUL they've up-ed her morphine and thank God that she has doctors looking after her and morphine to help. Our prayers are with you. May you all find some rest today.
Kelli
You absolutely should not be worried that people think you're "self-consumed," "negative," or anything else that is critical. There's not a whole lot that's worse that what your baby girl is going through. It's right up there with some of the horrors in third-world countries, and I'm SUPER-THANKFUL they've up-ed her morphine and thank God that she has doctors looking after her and morphine to help. Our prayers are with you. May you all find some rest today.
Kelli
I just wanted to let you know I am praying so hard for little Abby. But not only for her, but also for the whole family. It is evident how much she is loved. I will continue to pray.
Sweet Abby, you are such a strong little fighter. I'm so sorry you have to endure this pain, little one. My heart breaks with every update, and I pray things take a turn for the better soon. We love you and think of you daily.
Much Love,
Joanna
My heart aches for dear sweet Abby, she is so precious! I pray that our Father's arms hold each of you extra tight these next days.
Eventhough we are strangers, we are IN THIS with you. And we are lifting you up in humble prayer.
Peace and Blessings!
Lisa at BlogBaby
I'm meeting with my surgeon tomorrow about getting a new feeding tube, since my current one doesn't work, getting my gallbladder out, since it doesn't work, and doing something for my stomach, since it doesn't work.
I too am in constant pain and I'm on Dilaudid ( which is 5 times stronger than morphine.)
I'm really hoping that I can have surgery sometime this week.
I am praying for Abby and you all. Please God may today be a better day for this cutie patootie.
woke up in Minneapolis this morning thinking about Abby and your family.
Praying for Abby and your family.
Praying for Abby to feel some relief and get some rest and also for you all to be able to rest some. hopefully today will be a better day. Hopefully wound care specialist can do something about her infection. God Bless you all
It rips my heart to pieces every time I read a post. I can't even imagine.. Prayers and hugs for Abby and your family from Colorado.
Dear sweet Abby and entire Riggs family--I have been following Abby's battle against cancer. My heart has been so touched--I often find myself thinking of her and turning those thoughts to prayer. Our youngest had a short hospital stay last year, with a possable diagnosis of Leukemia--what a very hard time for us--and you have been through SO MUCH MORE!! Last night after reading your post I went and tucked my three boys in, while they were sleeping and just prayed for ABBY. You are amazing parents and I know GOD is with you each moment of this my challenging time. Much love to you from Washington State. Love, Rachelle
I cant imagine what abby & your family is going through right now. i truely admire your strong faith. praying everyday for all of you. I hope abby has a better day today..
alex
Brent,
I am so sorry. My heart is breaking for you all. Hey, have they tried heat lamps on her? Once when Ethan's bottom was extremely raw, as in 3rd degree burns from chemo poop they used heat lamps like they do for women after having babies and it worked wonders. Even neutropenic. Just a suggestion. Praying for quick recovery. And sleep for all.
I just wanted to let you know we are praying for Abby here. I'm in agreement with you for Abby's complete healing and restoration. Also praying for her comfort...
Angela,
Tulsa OK
Your faith inspires, your ability to think of others in the midst of such a personal time of suffering is a blessing to witness. Praying you guys are asleep as I type, praying for comfort for Abby today, for wisdom from the wound care specialist and ultimately for His healing to come, His mercy to pour like rain on all of you and you to SEE Him working, SEE him moving in ways that you could never imagine. We count it a privilege to pray for you, my kids are frequently wanting me to check for a new update- praying for Abby has been a blessing for them.
May today be a true Sabbath for you- by His grace somehow may you experience rest.
Hearing my sweet 3 year old pray for your precious angel Abby just brought tears to my eyes this morning. She asks about her constantly and I just keep telling her that she is in God's hands.
We pray you are able to get some rest today. Love to you all.
The Curry family
I am so sorry, how much more can this baby endure? Breaking your heart is an understatement, that is for sure. My prayers and thoughts are with you. I am so ashamed that i have complained of having pain, she stays on my mind constantly. God is in control, many times we don't understand, but His will....will be done. He loves Abby and this is for a reason. God will say when enough is enough. I pray for comfort for Abby, and strength and peace for her family. The world all over are praying and thinking of you all. We love you Abby. (what can we do to help things seem a little better, you have enough to do to stay strong for Abby). If there are other needs, please announce them to us, many want to know. God Bless your family.
Were praying for super natural strength for you and Michelle and super natural healing for sweet Abby.
Praying that this sabbath day will truly be a day of rest for you and your sweet little girl!
there is nothing i can say... but i am praying. my heart breaks for abby today... i'm praying for her comfort and healing, and rest. for your entire family as well.
Amanda
Huntsville, AL
Brent and Michelle,
I am praying for you. I can't imagine how you could handle this without God's help. God is so amazing that way.
I am praying someone is able to minister to your needs today in person and offer a hand. I only wish I lived closer to help with that.
I am praying today especially you are able to get sleep and refreshed.
I am trusting that the Lord will give you continued strength to endure this terrible time. My wife and I adopted a little girl from Guatemala as well. Your family and Abby especially have a very special place in our hearts. We are praying for you all. Blessings and prayers for that He will strengthen and guide you all.
Jason and Tera
Minneapolis MN
Oh, precious Abby! My heart is burdened for you! I'm praying for mirculous pain relief, sweet girl. Dear Jesus, have mercy on Abby! Give her sleep and respite from this agony! Bless Brent and Michelle with the strength to endure and give Abby whatever she needs right now physically, emotionally, psychologically, and spiritually. Thank You, Lord, for loving Abby and us beyond our own understanding.
My dearest and sweetest Abby I have been following your blog through some friends who have adopted from Ethiopia and have their site linked to yours. My prayers have been with you - as have been my thoughts and prayers. Last night my little ones were up every 2 hours (which is odd ... they are 4 & 2 - almost three!)and each time you my little princess crept into my mind. I know that the holy spirit speaks to us and I feel as though He knew that you needed extra prayers. I will continue to keep you in prayer and asking for healing, strength and peace. Your parents are wonderful and your family is fortunate to share the love and faith that I have witnessed through your blog. If there is a way that I could have a snail mail address I would love to send you notes and creations from my kiddos! My email is: juli@mkassist4u.com.
God Bless You ... I tell my kiddos each night when I tuck them in, "sleep with the angels" & another of their favorites is, "don't let the bed bugs bite!"
Brent & Michelle,
Thank you for updating us all on Abby. It breaks my heart to know the pain and agony she is going through but I know exactly what to pray for her in that moment.
I know we all pray for her with our whole hearts all through the day but what about setting a time and date in the next day or so for us all to band together at the same time - lifting our prayers to Jesus at once. I miscarried twins a couple of years ago and was going through some terrible labor pains and broken heart pains...the doc sent me home to deal with it on my own. My family contacted their churches and our family and they all sent up prayers at once and I was so comforted - the pain lifted and the hand of God was on me.
Just a thought. I know I would be willing and I would contact all of my prayer partners to do the same.
Sorry to write so much.
Big Hugs to you all,
Lisa
I am so sorry that Abby and you family are going through this. I am praying that your baby abby turns the corning soon. My heart breaks because only our heaven lord knows what corner this will be. But please lord don't let this dear child suffer.
(((hugs))) go out to Miss Abby and your family. I so pray she is back in your arms soon with out the pain.
Robin Martin
Kailee's lucky mommy in Iowa
I pray that Abby got some much needed rest and that her pain has gone now. Each day I pray for Abby to have strength and for her pain to lessen. Praying for Abby and your family, always.
From Tasha
(Outside Toronto, Canada)
So sorry for Abby's pain = praying for Abby and Michelle and Brent.
22"Have faith in God," Jesus answered.
23"I tell you the truth, if anyone says to this mountain, 'Go, throw yourself into the sea,' and does not doubt in his heart but believes that what he says will happen, it will be done for him.
24Therefore I tell you, whatever you ask for in prayer, believe that you have received it, and it will be yours.
Praying in Laguna, Cali snd sppreciating you updating us so we know specifically what to pray for.
I pray all of you got some much needed rest after the med change. The combination of Mophine, Ativan, and Phentenol should do the trick. I was a hospice social worker, and that seemed to be the combination for pain management. If there are any Hospice Nurse's reading this, they may be able to give you a better combination. I am praying God gives her comfort and rest so she can begin to heal.
While we are praying her pain gets managed and the sores heal. We are also praising God her bone marrow is beginning to recover.. Praise God this is very good news. Come on White blood cells its your turn!.
We have the stomach flu here. Three of my children are sick and I was feeling sorry for myself because I had to miss church. WOW, I am now going to kneel in prayer and ask God to forgive me for being so very selfish.
Praying for rest for all of you.
Kristi
We are in Cheyenne, Wyoming and we are praying this morning for Abby. Thank you for writing and updating, as hard as that must be. We are all so anxious and worried about Abby. My only prayer is that God would strengthen and heal.
we are praying for sweet Abby. Anna constantly asking to check for updates.
Praying for you in Kentucky.
When My daughter had these blisters they tried everything and nothing worked. They even used the burn cream that you wrote about. They finally had someone from NICU and they gave her an ointment called Xenaderm. We had to apply it often. When you describe Abbys pain it takes me back to my childs pain, and it is horrible to feel so helpless. If your doctor hasnt heard of this ointment it is marketed by healthpoint 1-800-441-8227 reorder no. 0064-3900-60
Hope Abby is feeling better soon.
Keri Hann
That poor precious baby...my heart just breaks for her and for you too to have to see your little angel in pain. You are all constantly in my prayers.
I feel so badly for everything Abby is having to go through. No one, especially a child, should have to endure so much. This brings tears to my eyes. I am thinking of and praying for Abby and your family.
We are the Needham's from California.Our Zoey,who is not quite 2, was diagnosed in October with AML.One family to another, just extending our deep and faithful prayers for Abby's pain to be managed and that rest comes to you all so you may pass through these difficult days.May God continue to cover you in His amazing grace.Our prayers are with your most precious Abby.
hearts all over the world are aching for Abby. Little voices prayed with their mommies and daddies last night as they lay down so that Abby, too, could have sleep. Churches everywhere have her in their prayers during services today. We are all thinking of you and even as our lives move through the day, you are never far from our minds.
Please, God, hear our prayers. Hold them, comfort them, keep them. Please, God, give them some peace today, be with Abby.
Heather in KS.
Please dont wipe Abbey after she uses bathroom. Baby wipes have alcohol and sting sores! Also any toilet paper will rub those sores raw!..Instead ask nurses for a "peri bottle" , more like a squirt bottle you fill with warm water and perhaps a bit of baby soap. You can rinse off her sore parts that way after she uses bathroom. Much more comfortable than wiping it raw. Also ask the doctors for some "butt paste", it is a concoction the docs mix up that helps heal sores and protects them from urine which stings greatly. Blessings to Abby, may her pain be diminished today. xox
BTW, It's spelled FENTANOL, not Phentenol
Dear Brent and Michelle,
I came across your blog from a few others I follow. My prayers are with Abby and your whole family. My son, Philip, has leukemia as well...and praise God is doing very well. I read a little of your blog and I thank you for sharing your fatih, hope and joy with so many while on this journey with Abby.
My prayers continue...
Suzanne
www.caringbridge.org/visit/philipendres
All of you are in our constant prayers.
Praying for you all in the Netherlands.
I'm praying for comfort and rest almost constantly for all of you. Will be heading out to church shortly...the Lord is good, he hears all prayers.
God bless and comfort all of you!
Love,
Mare
sending love and prayer from fort collins, co.
Poor little mite. I do hope it won't be long until her counts recover and she can begin fighting back.
How kind of you to still offer prayers for those in need, even in your own time of suffering. I don't need any prayers, but please spare a few for the people here in Australia who have been affected by bushfires. More than 100 people have died and nearly 700 lost homes.
Marie
Hello!! I'm From Guatemala.. I've been hearing a lot about Aby. I know it's hard to bear that. I'm hoping she will get better.
God Bless you!! Romans 8:28. Read it please.
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