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Feb 8, 2009

Abby Update: 7am Sunday Morning

Fluorescent lights and a sing-songey "good morning" disintegrates my one and half hours of exhaustion-induced sleep with the same traumatic effect of banging metal pots and a bullhorn.

"Good morning, folks", I hear a second time, room lights at full nuclear glare now.

I'm in one torture rack (code word for hospital pretend bed); Michelle and Abby are on another, a pullout couch sort of thingy. I sit up on an elbow, "um, yeah, hey, she didn't fall asleep until about 5.30am... so if we could not wake her...."

That didn't phase him for a quantum split second as he rang out, "I understand you want the surgery team to look at her feeding tube site?"

Normally we don't hear from anyone resembling a doctor until late morning or noon, but here's this guy invading what little sleep we had promptly at "O dark thirty" (that's :30 minutes after sunrise for you civilians). Of course Michelle has not even blinked. When she is this tired, you could drive a beer truck with snow chains over her, and she wouldn't even roll over.

"Yeah, that's right... her port entry has a bad infection", I groaned almost at the point of getting one eye open without burning my retina, not sure if this was really happening or if the Tribulation had begun and the "Mid/Post" folks were right after all.

"Well, let's take a look," Mr Cheery Young Doctor says and proceeds to start pulling back covers and lifting Abby's shirt... still in bed, still asleep (or should I say still "under") with Mom in a coma about 2 ft away.

I cringed as he fiddled around with Abby's feeding tube thinking any minute she would wake and plunge once again into shrieks of pain. Mercifully, praise God, she didn't wake up. Only an hour of sleep and enough pain killers to sedate a small family of elephants will do that to a four year old.

"Okay, well, I'll let'em know..." he announces and walks out.

"I'll let'em know????" Let who know what? Didn't he just examine her?

Turns out, Mr Morning Sunshine With Apparently No Sense of Grasping the Obvious Slumber Misery In Front Of Him isn't "the" doctor. He was just coming to check on our request to have "them" (the right Doctors evidently) come look at Abby.

(Note: I may have all the facts totally messed up, but I only had a little over an hour sleep AND it makes for a lot better story if I tell it this way!)

I turn out the lights, silently thank God that all this didn't wake up Abby, and return to my backache machine and faux pillow. I close my eyes.... I'm drifting... drifting... drif.....

Skip ahead an ENTIRE ten minutes... the nurses have changed shifts, so now the new nurse is in here checking vitals and my last hope of going to sleep became our blog's good fortune because the only quiet and sane thing I can do at this point is write something while Abby and Michelle slumber peacefully, oblivious to the Dante's dance of the revolving hospital room door that has become my own private breakfast of "h", "e", "double toothpicks".

Okay, that's an exaggeration too, but I'm a writer, I'm tired, and it's my blog, so what-a ya gonna do about it? The least I can do is make the most of the morning by making up a good story and booby-trapping the hospital room door.

Whew... I'm actually getting sleepy again... I think I'll go ahead and catch a few more winks.... zz... zzzz... zzzzzzzzzzz....

"Da-dee.... I have to pah-tee....."

~Brent

75 comments:

Blessed Mom of 8 said...

Oh Brent - I did chuckle with you!

I'm so sorry you continue to endure this without sleep. Sleep deprived anything is NEVER easy - let alone the trial with Abby!

Praying for rest and peace and the answers you need for her care!
Love,
Jill

Aileigh said...

Oh man! I hope you get some sleep soon!

Hauswife said...

Oh dear, Brent, I'm just amazed that you're able to crack a joke after the night you all endured! I was cracking up in spite of how awful the story is! I'm praying for sleeeeep for you all... And some wonderful, wicked boobytrapping ideas for those ding dong nurses!

Stephanie (Maya's mommy) said...

Oh, I'm so sorry!!! I pray for supernatural strength, and maybe even a few moments of sleep!!

Just a few thoughts after reading your last posts. Have "they" considered removing the feeding tube and placing a nasogastric tube to feed through her nose? And have they considered placing a catheter so that she doesn't have to go potty and wipe, since those things are excruciatingly painful for her?

Still praying!!
stephanie

Kathyb1960 said...

OH my goodness. They come in at all hours, that's for sure. When I was in the hospital a few years ago (emer append)I was not able to sleep very well b/c the pain meds made me nauseated ALL the time, and just as I would doze off, HERE they would come. One nurse did tell me I slept right through one of the vitals checks.

I had one nurse tell me it wasn't HER JOB to wipe off the toilet I had asked her to. It was only HER JOB to take my vitals.

Abby is in my prayers. I am sooo sorry she is sooo miserable, and going to the pah-tee makes her even more miserable.

I hope we don't have to find out what comes after excruciating.

God bless you all, and please tell Abby that Kathy and Jo Ann (my Mom) in West Texas are praying for her.

CindyO. said...

I'm so sorry Brent. What a tough time at the hospital.

I don't know why the nurses can't let y'all sleep for a while...

Good luck for a nap later today.

CindyO

Becky said...

AAAARRGGGHHHH...on your behalf. I HATE spending overnights in the hospital - you are so right, it is a constant revolving door. Ok, I know they're just doing their jobs, and that it is a tough job at that, and appreciate that it is important to check vitals, etc for the safety of the patient. That doesn't make it any less frustrating when you are a physically and emotionally exhausted caregiver. I am on a patient advocate group at our local hospital and this issue comes up frequently. It is one of the biggest complaints received on patient satisfaction reviews, but I don't think anyone has yet figured out how to make it stop!

Hoping you can catch some z's later today, somehow...

Jill (Sneaky Momma) said...

Praying for the strength and the energy to get you through the day today as you care for your little one and her mama. I so pray that the medical team can find some way to fix those sores so that Abby will not bve so miserable.

Tracey said...

Darn those cheery morning people!! Praying that Abby rocks on through the day!! And praying for sleep!!

Holly Gibbs said...

Hilarious post! I know too well what it is like in the weee hours in the hospital. Hope every gets the rest they need.

Holly Gibbs

Jessica Kerr said...

Brent,

I am really feeling your pain right now. I'm heartbroken for your family and especially for that sweet girl. But I think I just hurt something when I fell out of my chair laughing. I despise "short coats" I made it my person mission to get back at them. My favorite reaction was when we put one of those huge Taz balloons in the bathroom. I dont even know why they went in there but the scream was priceless. What you need to do, is go get a big printout of the girl from "the grudge" hang if from fishing line from the ceiling and voila. No early AM visits. It works. Im telling you. You are an awesome writer. I love reading your blog. You seem to think like me. But more creative....hmmm.
I am praying and laughing with you. And tired with you.

Rissa said...

Aww praying for some rest for all of you on this beautiful sunday morning!!

Stacie said...

i would like to criticize any night shift RN who comes in your room in the middle of the night and turns on your lights. i work night shift, and have for the last 4 1/2 years. it is usually unnecessary to have on any bright lights in a room. and, the nurses should be nice enough to coordinate as much of their time in the room with other things you might need at the same time. for example, if vital signs are due at 12, but a medication is due at 0100, they can be done at 1230 or 1245... at the same time. you can always request for them to try to do this if they are not. and, for goodness sake, ask them if they have ever heard of the invention "the flashlight!" i learned long ago, when i worked pediatrics, to do most of my work by the cracked open door of the bathroom and the light of the iv pump. it's amazing how much you really can see and do without waking a sleeping child. good luck! (i have no suggestions to help you with doctors... they do what they want when it is convenient for them. that will never change.)

Mandy said...

I've been thinking of you all and praying all evening and now this morning. Said a special prayer at church that Abby can rest and be comfortable and heal and that you both can rest.

Juls said...

I think the lack of sleep is beginning to make you delirious.... Sending peaceful sleep prayers your way... I agree hospital "workers" have no respect for precious sleep time....

Still praying!

Nold Family said...

Humor is good, it can be therapeutic at times like you and your family are experiencing. And, anyone in their right mind wouldn't have a problem with you venting or exaggerating a bit. You're entitled! Here's wishing you all more sleep, lots more sleep. And excellent pain relief, and some solutions to the sores and infection. Prayers and more prayers...

Elizabeth said...

Sending prayers up for your family. Specifically for rest and peace for all of you!!!

Lindsey's mom said...

Oh Brent! I am so sorry for the fatigue..Abby's pain..the insensitivity of some of the doctors! I do remember that part with my daughter's illness. I will continue to pray for Abby and all of you.

whenpigsfly said...

I love how you write Brent!!!!!!!!!!!!!!!!!!!!!!!!
We are home with 7 of the 9 living-at-home-Smith kiddos sick with flu or I would not be reading, writing or laughing at your descriptions until much later. As a nurse who has also been a patient and the mom of several patients I can testify that you speak total albeit comedic truth concerning your surroundings!
Thanfully sweet Abby was able to sleep though that little episode, and Michelle as well.
Praying pray ing praying for all of you today that God touch every facet of your lives today with His mighty power!
Linda
at
www.smithsoup.blogspot.com

J Gall said...

Hi. I'm new to your story over the past couple weeks, and this is my first comment. I'm praising God that Abby has relief this morning.

I woke at 12:30am Pacific Time feeling the need to pray again, specifically for Abby to be relieved of her pain. So I did. THEN, since I was up, I checked Twitter (or something, in my own half-awakeness) to find that you had posted the 2am update only about 15 minutes prior to my need to pray. Truely, she is in His hands.

Brian and Rachel said...

WOW!!! Isn't there a scripture about people like that doctor being that cheery in the early morning hours. Still praying. I pray you get some more rest today. Blessings.

kim said...

I am amazed by your ability to write in such a manner...and then I think - maybe it's God's grace upon you :-) You all remain in my prayers...and you all remain covered and wrapped in the capable arms of Jesus!!! May His mercy continue to carry you and heal Abby!!! Shalom to you, Kim Mauritz

Carla said...

That happens to me everytime I am at the hospital with my son! It makes me literally insane--certain doctors and nurses seriously lack common sense and compassion a lot and it has never made sense to me.

Hoping you somehow get some more sleep and find a better place to get it in. I have always slept with my kids in the hospital bed that they are in--so I get a lot more sleep than I would if I was on that chair that the hospital likes to think is a bed.

(((Hugs))) and hang in there!

Kritter Krit said...

To go through all you guys are going through and STILL be able to be funny...man, now THAT is a gift.

Having gone through our share of hospital stays with Sophs and her crazy reflux, I can totally sympathize with the joys of trying to sleep while all of that insanity is going on around you. I mean, I understand the importance of "checking vitals", but COME ON, do they have to charge in with the delicacy of a herd of rhinos? And, seriously, what's up with the VOLUME LEVEL that doctors feel inclined to use, regardless of time of crack 'o dawn? I'm not saying whisper, but would it kill 'em to attempt something other than "GENTLEMEN, START YOUR ENGINES!!!!"

Russ and I would always attempt to find humor in those little "annoyances", but I'm sure we had a we're-going-to-commit-a-teeny-murder look on our faces. And Sophs and I are crazy light sleepers (if the AIR in the room moves, we are at full alert), regardless of our level of exhaustion. So every time a nurse or doctor would make an appearance, POOF, eyes open! Oh, and we LOVED the "I'll let them know..." thing from the interns. It's like, seriously people, you woke us all up AGAIN and you're not "the" doctor? SEND THE DOCTOR, for Pete's sake!

Okay, phew. So, that's just about enough out of me. Apparently, despite some distance from those days, I still have a few Memory Rants at the ready.

Praying that the doctors get the g-tube infection under control and that the site is not damaged to the point of having to reposition the tube. Praying that the three of you are somehow able to have a few hours of uninterrupted sleep that refreshes you, body and spirit. Praying that Abby's sores will heal and that bathroom trips will be less torturous. And, today, I'm going to be praying lots for Michelle, specifically. If you'll let her know she has been heavy on my heart, I would appreciate it.

Thanks for the updates.

******

P.S Also, thank you for your kind reply on my blog. With all you have on your plate, the fact that you took the time to do that, well, it boggles my mind. You guys are such an unselfish family. It's such a blessing.

Vanessa said...

I'm glad to hear Abby slept through it all!! I hope they can find a solution to the infection in her g-tube and you guys can get some much needed rest!!

Stephanie said...

I hope you all are able to get some rest today and Abby is relieved of her pain!

Keeping you all in my thoughts and prayers!

Anonymous said...

Praying for a restful day for Abby today, and answers to deal with the pain she is having. Also, for wisdom for the doctors to have more plain old common sense, my word, I couldn't believe what I was reading! We love you, Abby, and are always thinking about you and praying for you.

Nilia

christall said...

Brent
I wasn't able to figure out how to email you so I'm jus16t going to post and pray...
This is actually about your previous post and Abby's potty *issues*

When I was much younger (16) I was undergoing chemotherapy and had the same issue with sores that Abby is having. At the time, the nurses would fill a sitz bath - or put a few inches of water in the tub (and I'm so sorry this is SO gross - but seriously, it saved me a tremendous amount of pain) and when I had to pee, I would do it in the bathtub. We let go of wiping - and just splashed some water around the area (again, so sorry that this is way TMI!). The water instantly diluted the acidity of the urine so it didn't sting and burn the sores in the area. And really - urine is sterile so I wasn't too grossed out by the whole process - and just thankful that it hurt SOOOO much less than just using the toilet.

I hope this might help Abby - I really can't express how helpful it was for me. Know that she, and the rest of your family are always in my prayers.

Anonymous said...

Glad Abby is getting some rest, i have been there....done that (losing sleep at hospital) but this is what we have to do and make the best of it, i think one can realize how little sleep they can go on when things are very serious as your journey with Abby is. By the grace of God, He still gives us strength to go on and on and do what we have to, to help the sick. I do know some medical personnel are out of line when they do such things as this without thinking or whatever it might be, but God can take care of that too. You still keep a joyful heart in all this, so i do hope that all the small stuff works out, but the Huge thing is that Abby gets relief in her pain and if God's will, healing for her little body. God will provide what you and Michelle need, i truly believe that Brent, after all He chose you two to be the best babysitters for Abby. They are only ours for awhile. He could have chosen from millios of people, but He wanted you and Michelle, what a great God we serve. I pray for comfort, rest, and peace for your family. Noone knows what they would do unless they were in the same situation as you ( i would have probably yelled at them) but let's keep praying for God to take care of all things in our paths. We love Abby dearly and hope the next update, things are better and easier for her...i have HOPE in Jesus.

fiaschetti said...

Brent, glad for the update and appreciate the fact that you can turn a phrase around such a subject. A mark of a talented writer. I enjoyed the post-- which I amost feel guilty for saying given it was not an enjoyable experience for you.

Laurie said...

Please pray for this family today:

http://themcclenahans.blogspot.com/

Sarah said...

This is my first stop this morning to check on Abby! I am so sorry for the rough night last night and especially for the much interrupted sleep! Tired parents don't help with your ability to comfort your girl during the waking hours. I hope that you were able to get some sleep this morning after Dr. Dawn came in!

I was on my knees in prayer this morning for Abby at church. I hope that her WBC's are gearing up to kick some serious infection butt today!! Go Abby! You can do it, little princess!!!

Love, hugs and FROG!

Sarah and Sophie~Bug

PS... I cannot believe you have time to comment on blogs, Brent!! xoxo

Mama SeWELL said...

Sleep depravation will make you do crazy things! I hope today is a breath of fresh air for Abby, you, & Michelle. With things being so bad they have to take a turn for the better soon. I wish Abby a comfortable day, I know she needs one! Does she not have a cath. to help her potty so its not so uncomfortable? I mean not that they are comfortable, but anything to help!
Lots of hugs & prayers today!

Liz said...

I agree with christall about the sitz bath if your hospital folks would allow... warm water can also help promote healing. If comfortable enough Abby may want to sit in it longer than just for pee... bubbles may take her mind off the moment.

regarding the difficulites assoc with hospital staff, i would try to imagine i was staying at a swanky hotel and actually have a "Do Not Disturb" sign on the door even though I know they can fully adhere to it, but hopefully they'll get a reminder to be considerate. I'd also leave personal notes either on the door off the room or wherever pple check.. Like, "fell asleep by 5:30am, please give us a break" this will keep the hospital staff better informed and they may keep you in mind more when they look forward to your notes... bribing may also work - leave chocolates if they leave you uninterrupted for 3hrs.

Candy said...

You totally CRACK me up as I think you are as NUTTY as I am! Love the beer truck rolling over Michelle....as I am the same way when I am asleep...I once slept at my dads concert with my head in front of the drum head and the amp at my feet...So I love the story and really WHAT IS WRONG that hospital staff INSIST on waking you up so much. HUGS to you all this morning

Kim said...

Oh I sure hope your family is able to get some good rest today! I'm praying so hard for Abby and it just breaks my heart that she is in such awful pain. STay strong for her, I just know you and Michelle are doing such a great job with her. Just think, where would she be now without you two?! She really is blessed and I hope God can take her pain away soon!!!

Kritter Krit said...

Sophie just came up and told me that she would like to send Abby a Valentine's Day present. Actually, she told me specifically what she would like to send, but I won't ruin the surprise! Knowing how very With-It I am and my ability to drag my heels where the post office is concerned, it'll probably be more like a St. Patty's Day present, but we're going to aim for timeliness!

I know I've come across an email address for you guys, but darn it if I can't seem to find it on your blog. Apparently, it needs to be neon and flashing, with a big arrow saying RIGHT HERE!, for those of us who are a bit computerly challenged. Do you mind emailing me at: kristindepriest@gmail.com whenever you get a free moment (ha!) to let me know the best address to send a package to?

Thanks!

~Kristy

Kelly said...

Hoping your family is able to sleep soon. Our family continues to pray for Abby everyday. May God bless you!

Sweet Joni said...

Well shoot ~ I was being so quiet ALL night not to wake you too! If I'd known I'd have at least brought you a pillow for untop the fax machine! ;-)

So totally agree with Stacie above... MUCH can be done by light of cracked door! (did night shifts this way AND I'm night blind) And Yes, Docs have their OWN schedule... a positive was He was CHEERY instead of Grumpy :-D

My prayers continue to Heal Abby.
Thanks so much for posting YOU and not trying to "please" us! It is YOUR blog :-) Which btw, I should update mine today... take care & God Bless!
~Joni

Darlene said...

Oh, we are praying so much for little Abby, and for you all... sometimes I think if those Docs, etc. had any sympathy, they would collapse at all the sadness they see..... but when we were in the hospital last week with our little guy, that notion did NOT stop me from wanting to slap the nurse who woke my precious boy up to "help" him after only 3 hrs sleep!!

Leann said...

Praying for rest for you and for doctors who are sensitive to your needs!!

~*Michelle*~ said...

I just got in from Church.....I was in praise and worship and had beautiful images of angels surrounding Abby's bed.....dancing and singing. Then I saw God's hand come down in the center and touch Abby's head. Then, I saw this beautiful smile come over Abby's face. There was tons of light too.

I just needed to share that with you.

Peace
*~Michelle~*

Magen said...

Oh I can not imagine how hard this is for your family. I will pray that God gives you supernatural strength to fight through this for both you and michelle and Abby. We are praying for Abby. You are strong people and so wonderful, I know you can do this because mommy's and daddy's can do anything when it comes to their babies. God Bless

Andrea said...

Oh Brent, we have had that Dr, I feel your pain. ;o( Do they not get training in bedside sleep deprived parents with sick children?!
God Bless you, I pray for you to be able to get some sleep, and for some relief for poor sweet Abby.
You are in my thoughts and prayers all the time.
May God give you strength and rest.

Lisa said...

Brent,

Your humor and ability to write it all down really made my afternoon. I can't believe what that doctor did! Oh well. Hope you were able to get a little rest and that you guys will be strong for that little peanut. You are all in my prayers!

Sandy at God Speaks Today said...

I'm so thankful you find humor in the horrific. I'm the same way. Keeps me sane.

Weeping as I read through the last few updates with the sores and the pain. I'm so sorry.

Praying Praying!!!!!

Love,
Sandy

The Byrd's Nest said...

Arghhh...Hospitals! When my Emma Jane had pneumonia they came in every hour it seemed waking her up taking her blood pressure. I finally....the good Christian Mom that I am;) barked at the last one before morning and she quickly ran out of the room.

Praying praying praying here at the Byrd's Nest!

Sara said...

have they thought about putting a catheter in so abby can rest without getting up to the bathroom and having to wipe with the sores being so bad?? just a thought. praying for y'all.

Anonymous said...

Brent & Michelle, We are praying for strength for you and relief for dear Abby! Please know that you remain in our thoughts and prayers continually. May God grant you peace in the midst of this storm.
Love to you all,
Cindy Morby

Lisa said...

I am a Peds Rn at at childrens hospital in TN and I know exactly what this feels like,I have to do this on a daily basis and it's so hard on the pt and the families as well..HOpe everyone gets the rest needed and that Abby starts to feel better soon..

Holly said...

Oh wow. That was funny, and I'm so glad you are able to have a sense of humor in such a situation!! Those of us who have had the privilege of sleeping over night in hospitals completely understand!! blessings to you. We are still praying.

MP said...

Dear Abby's Parents.
Just a thought from a mommy and not a medical professional. In regards to the raw 'private parts' has anyone at the hospital suggested an antifungal for yeast? I don't know about cancer or the meds she is on but I do know it is almost always Yeast and sometimes caused by Thrush. I do know that some manifests as yeast. Monistat is what I have used and it works. It may be uncomfortable at first because she is so raw but it will help and it's nothing compared to what she is suffering now. Slather her with it as often as possible. Then slather A&D to help keep the urine off of it. Just a very concerned Mommy sharing.

Gill said...

Hope you had a bigger sleep!! Although lack opf sleep obviously does not effect your ability to be humourous while writing! Bless you!
Hopeing the "real" Dr's come back and tell you something you DO want to hear. Keeping you in my prayers.

The Engelhardt 4 said...

saying lots of prayers for abby!! sending hugs.

Sarah said...

Wow, I hope you were able to get some more sleep and Michelle & Abby were able to sleep a bit more without being woken up. Also...gotta say, I love the "o dark thirty" reference.

Duda Family said...

We are praying for your daughter and your family. May you get some good rest and Abby heal and recover gently. What remarkable strength your family has. Peace - The Duda family in St. Pete (www.huntershomecoming.blogspot.com)

The Zimmers said...

We are still praying for Abby, you, your family, the doctors. But, now we will pray for Mr. Morning Sunshine in a different way. Our next prayer will mention tact and mercy while Abby (and the rest of you) try to sleep! It's nice to see you are able to still have a bit of humor! Continuing prayers and lifting you up to God's grace and healing.

Torismom said...

This may be a silly questions, but can't the let her use a bidet instead of wiping and then use some of that numbing spray afterwards? I know that when I had my daughter (sorry to get so technical) that was a God send to me because I was sore, cut, and bruised up. It actually gave some relief. just a thought, I'm sure they've thought of that too.

Continuing to pray for you!

ayshiaeh said...

I know this isn't supposed to be hilarious but it's hilarious. My husband is a physician so it struck me that much funnier! I hope everything is going better now. (Sounds like typical doctors to me by the way!)

Anonymous said...

Hoping that you caught up on some slumber since the o dark thirty wake up. Have been praying all day for those white blood cells to multiply.

We are "Praying for Abby"
Bonnie McClanahan and Family

Tamatha said...

Brent, I swear you and your wife are rock stars... you never cease to amaze me. While my heart weeps for Abby and your family, I also laugh at your wit and ability to stay sane. I have three sweet girls and talk to them about Abby..I only hope that they can have such a beautiful soul as hers. All of my prayers are with Abby and your family.

Nancy Feuerborn said...

I hate hospitals. When my daughter had Rocky Mountain Spotted Fever it seems as if we never got to sleep until 4 or 5 in the morning and then an hour or two later some chipper, obnoxious resident would be there to ask the most inane questions. Why can't they time their "vitals", blood draws, visits etc. etc. all together instead of chinese water torture style? You are ALL in our prayers...especially dear, little Abby. God bless, the Feuerborns in Nebraska

Princess Gabby and Prince Hunter said...

I am praying so hard for your family amazed you wrote such a story on so little sleep. I pray Abby gets through this, it just makes me ache to read about her, I want so badly for her to feel better. I pray for pain control and pray for strength for you all. I know its tough. I cannot imagine. Hugs and lots of prayers.

Christy said...

That was a funny one.. I laughed... Hope all is well with Abby.. How did everything go the rest of the day? How is her feeding tube? Praying that the Lord gives her relief tonight so you guys can sleep a full night.

God Bless,
christy

Tish said...

praying for God's mercy on her tiny body....

Jennifer said...

I pray that you were able to get some sleep today...all 3 of you!
I also pray that Abby had a better day.

Jennifer

Teach Me to Be Still said...

Uggh. You poor things. We have been in and out of the hospital for minor things and the lack of sleep is the worst. I can only imagine how terrible it is when the situation is so critical. Don't they know that rest is necessary for healing? Geesh. We had one hospital that let us put a sign on the door, asking that lights NOT be turned on, with the dr's signature on it. Worked for awhile with the nurses who were constantly in and out. Praying for you!! Praying for the staff to be extra sensitive and compassionate...

You may have already thought of this but any chance they can just gently pour warm water over her after she uses the restroom, then pat dry? I am not familiar with cancer and sores so perhaps you cannot. Just another mom out here feeling her pain (and yours). :-)

My 4th-5th grade Sunday class out here in CA prayed for Abby today (and for mom and dad too!)

The Lord is right there with you... Psalm 34:18 The LORD is close to the brokenhearted and saves those who are crushed in spirit.

Your Sister in Him-
Laurie

Pb and J said...

Hi Brent - I'm a friend of Gunter and Bethany's and they've linked me to your blog through facebook. I know exactly where you are at - I've been there. My sister went through the same ordeal when she was seven, and i was nine. I wasn't the parent in the hospital with her, but I know from my parent's experience, and being a parent myself now...I understand. My heart breaks for your sweet baby girl - please know that HE IS ABLE and we are praying with you and for you. God give you strength and rest and joy through your trials. In Love, the Bonners

Mary (in MN) said...

It is sad that one little girl has to endure soooooo much. Abby is in my thoughts often through out the day and I pray that she gets releif from all the pain and is able to rest. At the same time I think how wonderful it is that Abby has such a loving, caring, attentive, and faithful mommy and daddy!! I truely feel better (not that it's about me at all) when I think of Abby knowing that she is so loved and cared for by her mommy and daddy. I will contine to pray for your precious Abby!!

Mary (who stumbled upon your blog from another blog and became captivated with your beautiful Abby!)

Doreen said...

Praying , wishing on stars and hoping that Abby's little angel can help her get her through this and make all the pain go away ..hugs, prayers and love.. doreen

Katie said...

I am continuing to pray for Abby. She is never far from my thoughts. I am praying for you and Michelle as well.

Michelle said...

Abby has been on our hearts and minds all day. I prayed a lot for her at church this morning, I appreciate the humor in your posts. I am hoping you got some sleep! I was only in the hospital once; when I had a c-section in Germany, but I had a bad reaction to the annesthisia and between being woken up to nurse my daughter and being woken up to be checked on-I was sooo tired! I couldn't do anything on my own for the first three days(walk,eat,etc.,) so I needed constant care-that seemed VERY constant in the middle of the night! But when I needed to go "pah-tee" in the daytime-no one was around! :)
Thanks again for your humor in light of your situation. And thank you for all the updates.
Michelle Mann

Anonymous said...

This is the first time I have ever read your blog, my sister, Lisa, reads it daily however. I am momma to Dylan (the blog Our life with Dylan) and I can't even imagine what your family is goind through!!! So thankful that so many prayers have been answered and I will be praying that so many more will be answered, also!!!! Much love and prayers, Amy Jo

Leslie said...

Brent, May I borrow your photo montage for our next hospital stay?! What is up with this????? I finally told the "doctors" to get out until the nurses started coming in. And I asked the nurses and techs to come in at the SAME time … why do they not do this anyway?!

It is mind-boggling and enough to make me one throw things at anyone who walks in next!!! I don't know if you all are at a *teaching* hospital, but I finally told the *students* they'd have to come when she was awake or not come at all.

Hope today is better in all ways. Praying for her continually and you all too.

Ali said...

Brent,
You're hysterical. I'm so glad you still can laugh in the middle of all this. Hang in there. You're a trooper.