Things are still rough with Abby, but we have many things to be thankful for today.
First, Abby's doctor increased the amount of continuous morphine Abby is getting, so she is more comfortable and needs less extra doses of pain medicine. He also ordered a much larger boluses (extra single doses) so when she does need extra medicine she feels relief right away, instead of getting a tiny dose every 15 minutes that has little effect. It is now easier for all of us to get more sleep and it's not so traumatic for Abby to go potty and change dressings.
Abby's oncologist thought Abby would need surgery on her stomach wound and have her g-tube surgically moved to a different spot. The surgeon looked at Abby's stomach this morning and he believes that burn-like tissue around her G-Tube would heal without surgery. VERY good news. He seemed to be unquestionably confident in his evaluation. He deals with G-tubes daily, so we felt really good about his opinion.
Abby is now producing enough white blood cells to begin to heal her mouth and bottom sores (ANC 671). This is great news too. In a week or so they should be healed. Unfortunately the wounds around her g-tube will take much longer to heal.
Abby was supposed to begin her next phase of chemo (second month of delayed intensification) on Tuesday. This will have to be put off until the sores and wound around her g-tube site heal. This has to be done, but it puts her at a higher risk for relapse (the leukemia to come back) when we have to delay treatment.... that's BAD news.
For those of you who are newer to Abby's story. Abby has a genetic marker that makes her much more likely to have toxic side effects from the chemo, but she is also much more likely to relapse than leukemia patients who do not have this genetic marker. Her doctor thinks that most patients with this marker relapse because of the long breaks they need from chemo, to recover from the toxic side effects. Check out "About Abby..." if you want to know more.
We are so grateful for your prayers:
- For great pain relief
- The sores to heal
- The wound on her stomach to heal quickly
- Relief from diarrhea (the canker sores in her intestines have caused this)
- For Abby to resume chemo soon
- Remain cancer free
Abby's emotions are understandably raw because of the pain she is experiencing. Our normally contented and smiling girl is getting her "feelings hurt" by something a simple as a look from a stranger.
We are attempting to obtain second opinions from St. Jude and a hospital in Dallas.We have been warned that St Jude does not accept patients who have already begun their treatment elsewhere. Please pray that they will advise us., the second opinions are completed soon and that they provide clear direction and the best advice for Abby.
Brent's employer is changing insurance... that's not exactly good news either. Besides being a pain, it's going to cause some extra expense and more details to deal with. Please pray this doesn't effect Abby's treatment and for God's provision (which has never failed).
We read each of your comments and emails. We have tried many of your suggestions. Thank you so much for taking the time to advise, encourage and pray for our family.
We are so blessed that each of you have invested your time and life to care about us. Though it is NOT joyful that Abby suffers, we do "count it all joy" that God takes our most grievious trials and transforms them to blessing.