Mar 5, 2009
Abby Daily Update: Need Your Advice
The chemo Abby took that most likely tanked her bone marrow is ARA-C. Abby got the last dose of it on last Thursday. It takes most patients 21-28 days , after their last dose, for their bone marrow to recover. Abby is not a "normal" patient, so it may take her even longer. We could be in the hospital a while.
Abby's body is making zero white blood cells and she has an infection in the skin around her G-tube. The wound is looking worse everyday. As the sore is getting bigger, it is more painful. They doubled the amount of Morphine Abby is getting continuously. I am so thankful they are keeping her comfortable, but I really wish she wasn't going through so much right now.
Thank you so much for praying for me and for Abby. Last night was tough, but I felt much better in the morning. It looks like my stomach problem was just mild food poisoning. Good news, because then Abby won't get sick. Bad news, because we will be eating out of the hospital cafeteria for weeks to come. I am not the only one who has gotten food poisoning here. I am so thankful Abby is getting most of her nutrition from a feeding tube.
Honestly, we are wiped out today. Last night we had to do several painful dressing changes, and change the dressing on her port. The infusaport infuses medication into a large vein, near her heart, so an infection in her port would be very bad. Abby's infected G-tube is VERY close to her port. I am having the hardest time keeping them both clean. At 4:30am her needle came out of her port, so she had to be stuck again. The great thing was she slept through 95 % of it and didn't wake up until it was done. Praise God.
I know that there are many people reading this blog who have children with medical problems or who are in the medical field. I would love to get your advice. Abby is VERY allergic to tape, so keeping a super tight seal around her dressings are impossible. Should I ask for a PICC line in her opposite arm until her G-tube infection is healed? I think it would be so much easier to keep a PICC line clean. Traditional IVs aren't an option, because Abby's veins are pitiful.
I hate to do another procedure on Abby, but if it can help avoid a blood infection, it would be worth it. Any thoughts?