Abby goes from total discomfort and feeling bad most of the time to
brief moments of giddyness and cutting up. It's a sight to behold...
Today was a long day, filled with more questions than answers. The doctor making rounds today happens to be Abby's primary physician. It was comforting to see her in the midst of this crisis. The short version is Abby's temperature is up again, her bone marrow is still not working well (she needed a blood transfusion today) stomach is worse. The good thing is that her pain is well managed and they are now giving her even more antibiotics and an antifungal to try to help her.
The longer version is:
Abby's doctor thinks the wound on Abby's stomach looks "impressive" and "very concerning". Dr. Cain is reserved and poised, so that is about as much excitement as she ever expresses. I appreciate that she was honest with us. It was stressful to hear, but important to know.
Dr. Cain is consulting with a Pediatric Infectious Disease Physician and a dermatologist (to biopsy and diagnose the skin infection). They were already consulting with a Gastroenterologist, pain management physician and surgeons. As soon as Abby's counts recover she also wants to consult with an allergist, to determine if Abby is truly allergic to the "big gun" antibiotics that Abby seems to be allergic to. The hope is that she is allergic to an additive, instead of the actual medication that might save her life.
I am VERY thankful that so many talented doctors will be watching over Abby, but it also is draining to me to deal with so many people. It is necessary, but hard as well. Each specialty sends a separate resident and/or medical student to assess Abby every day. Then each specialist comes into our room, at different times, to assess Abby (usually surrounded by a group of medical students).
We also get to interact with nurses, physical therapist, wound care specialist, dietary and housekeeping on a daily basis. Everyone of these people is an answer to prayers and a blessing to Abby. I am very thankful for each of them, but I am also a very private and quiet person, dealing with the constant parade of helpful people is tiring for me. Please pray that I be able to communicate effectively, and the strength and wisdom necessary to help and care for Abby.
Please continue to pray for:
- Abby's healing
- Our other children (we miss being at home together)
- wisdom for the doctors and nurses
- strength and wisdom for Brent and I
I want to be sure and thank God for blessings along the way.
Abby has not been on medication for increased intracranial pressure for many weeks. She has had no problems with increased pressure.
Abby's pain is well managed. Abby is still in remission. Our wonderful friends have continued to care for our other children, we have had several people help to make this hospital stay easier for Abby and I, and we many, many people are continuing to bless us from afar. Your emails, comments and cards and care packages bless us more than you will ever know.