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Jun 9, 2009

Bone Marrow Drive

From Michelle:


We were warned at the beginning of Abby's treatment that it would be very difficult if not impossible to find a bone marrow match for her if she needed one. She is most likely to match with a person who is Hispanic and Mayan Indian. This is very difficult because Latinos and other ethnic groups are very underrepresented in bone marrow registries.


Since that time I have also watch many families struggle to find a bone marrow match for their child. While the biggest need is for non-Caucasian donors, I have seen many white children who have had difficulty locating a donor. We need every person, no matter their ethnic background, to register as a bone marrow donor.


Because Abby doesn't have a sibling who can donate bone marrow, they won't do a bone marrow transplant unless she relapses. But, there are many, many children who are in need of a transplant today. One of the most helpful things you can do to help them is to register. During this blood drive, all fees have been waved, so it is free for you to sign up.


Below is a message from a family who adopted a boy from Guatemala. Even after chemo, he still has cancer present in his bone marrow. Baring a miracle, he will have to get a bone marrow transplant in order to live. Please take a minute to read their message and to register.


Mateo needs a bone marrow transplant and there are currently no matching donors. He was born in Guatemala and finding a match has been difficult. We need as many people as possible to register and join the database, not only for Mateo, but for any of the people waiting for donors. Any type of donor is welcome, but non-Caucasian donors are dramatically under-represented in the database.


Please feel free to pass this message on!


If you haven't registered with the National Marrow Donor Program, now is the time. During this drive, the testing fee is waived. You can sign-up ONLINE and submit your samples by mail.


1. Between 8-22 June 2009, Go to: http://www.marrow.org/


2. Click JOIN


3. Review the medical guidelines


4. Fill out the information so the NMDP can contact you if you are a match


5. Use the PROMO CODE: "swab4mateo" so we can track donors from this drive.


6. Receive your kit in the mail and perform four simple swabs of the inside of your cheek and send them back.


Your chances of matching anyone are about 1 in 20,000 - but if you are THE match, you could be the one to save some one's life. Donors must:


1. Be between the ages of 18-60

2. Meet the medical guidelines (http://marrow.org/JOIN/Med_Guidelines_Join/index.html)

3. Be willing to donate to any person in need.


If you are a match for someone, there are two methods of donating :


30% of the time: Bone marrow donation is a surgical procedure in which liquid marrow is withdrawn from the back of the donor's pelvic bones using special, hollow needles. General or regional anesthesia is always used for this procedure, so donors feel no needle injections and no pain during marrow donation. Most donors feel some pain in their lower back for a few days afterwards. Mateo undergoes a similar process ever few weeks. If he can do it, so can you!


70% of the time:Peripheral blood cell (PBSC) donation involves removing a donor's blood through a sterile needle in one arm. The blood is passed through a machine that separates out the cells used in transplants. The remaining blood is returned through the other arm. You can donate at a facility local to you and the costs of donating are paid by the recipient or their insurance. FAQ about Bone Marrow donation:


http://marrow.org/JOIN/FAQs_about_Joining_the_Registry/index.html


BE THE MATCH!

7 comments:

wedogmomma said...

Hi there...I tend to lurk...but I have questions maybe you can help me with...

I have an envelope for tissue typing...sitting here on my desk. I signed up for it a week ago and I have been contemplating going through with it ever since.

I LOVE to give blood, and am very willing to do what I can to help another person with what God has given me. However, I was a little hesitant to be on the registry for so long...I am only in my 30s....
and wondered two things:
1) are potential recipients contacted BEFORE I am consulted, or do I get the chance to decide whether I'd like to donate before their hopes are lifted?
2) Are there any risks associated with donation. It's not that I'm fearful of pain, but I have 3 kids of my own to consider. I want to be prayerful about putting them at any loss...if something could happen to me.

I am Hispanic, so I know the need is there....I just want to get all of my questions out before I send in my typing sample.
Thanks,
Nikki

Joni In MN said...

I feel for Mateo & all the other children that cannot undergo this life saving technique because of NO donor match and I so wish I could donote but due to so many medical issues including past Kidney Cancer it is impossible. I pray that Mateo & Abby (if needed) along w/others get the needed HELP!
Sincerly,
~Joni Lee

Danita said...

I signed up and should recieve my kit in a week!
& I'm hispanic & have mayan blood! :)

Misty Rice said...

Bless his heart. He is so beautiful. I want to jump through the screen and snuggle to him.

I will pray and PRAY that he find his donor....

I heart its painful for donor, but life doesn't have a price...well it does have one price JESUS.

I have a question, when you donate, but they don't have use for it at that very moment, how long can it be reserved?

Just wondering if there is better time over the other to donate? Oh and does blood type matter? How does bone marrow match up same or differently than blood? Thanks for your love and giving.

God Bless...

Cortney said...

I signed up through this link and posted on my twitter and Facebook. I may not be hispanic but am Native American so hopefully If anyone ever needs my bone marrow I can help!

Anonymous said...

My name is Stacy Thieszen and I work with the National Marrow Donor Program. I thought I could jump in to try to answer a few of the questions people have posted.

wedogmomma, it is always YOUR decision whether or not to donate, but a patient may be told that a possible match has been identified, so we appreciate that you are thinking carefully about your decision to join.

Misty Rice, marrow is only collected for a specific patient whyen he or she is ready to go forward for transplant; it is not collected and held in reserve.

For more information about matching, the donation process and possible risks see: Donation FAQs

I hope that helps.

Amy said...

Hi Brent and Michelle,
My adopted daughter is of hispanic/Mayan decent and I have saved her cord blood from her birth. I would be happy to have it tested to see if it would match for anyone who may need it.
Thanks!
Amy Weagley