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Jan 22, 2010

Abby Good News Update & Day 6 of Fit@45

From Michelle:

I didn't know it was possible to be this excited, happy, grateful and sad (for my friend, more below) at the same time.

Abby's doctor did a spinal tap to see if her intracranial pressure was responding to the medication. Her pressure normally skyrockets after 3-4 days. It's been over a week and..

Abby’s pressure was almost normal!

Normal is 8 to 12 or 14, depending on who you are talking to. After all Abby has been through her pressure of 16 is fabulous. Abby is having much milder headaches and won’t need surgery if it stays this low. Praise God!

Please pray for Avalon...

While we rejoice for Abby, it is tempered knowing that our friend's daughter is NOT doing well, and her pressure remains a serious issue.

To the right is a pic of Avalon and her dad a few weeks ago, after the first of three surgeries. Like Brent did for Abby, he shaved his head when Avalon had hers shaved.

Avalon is a leukemia survivor who is suffering from increased intracranial pressure. She needs surgery on Monday but because of a botched surgery, Avalon's surgeon and parents must make a heartbreaking decision.

There are two possible surgeries that will help relieve the pressure, one will leave her permanently mute and the other will paralyze her. Would you please pray for a miracle for beautiful Avalon and divine wisdom for her parents?

Doped to the Max

The medication Abby is responding to is nicknamed "Dope-a-max" (Topomax). It earned the name because of the doped up, spacey look most of the people have when taking it. Abby is sleeping 14-20 hours a day and when she is awake she is not all "there". The narcotics and chemo add to the problem.



Brent got this photo of her today. She fell asleep in her "craps shirt"...
(that's how Abby says CRAFTS; it is one of Brent's old t-shirts)

She sleeps for hours on end and we finally just have to force her to wake up and live life. I am with Abby 24/7 but I miss her smile and sweet personality. Our hope is that the side effects will get better over time but if not they are a lot better than brain surgery.

Thank you for continuing to pray for Abby.

From Brent:

My goal is to be "Fit@45". Want to join me?

It doesn't matter how old you are. I'll encourage and support anyone who wants to join me. I update daily on the blog, and I'm begging you to absolutely hound me and chew my butt out if I do not stick to my commitments. The MckLinky lists below will grow and benefit us all.

Yesterdaily Update

Date: Friday, January 22, 2010
Weight loss since Jan 18th, 2009: 6.4 lbs.
Body Fat: 26%
Muscle Weight: 39.6 lbs.
Visceral Fat %: 22%

Did I stick to *diet yesterday? Yes
Comments about eating: Ate healthy foods but ate too much; need to cut down on calories, be better about portions and tracking calories.

Exercise yesterday? Yes
Comments about exercise: Worked out TWICE; 2 hours of walking/jog/steps at 140 heart rate.

*Diet: Proteins, veggies, fruits, raw foods. Violations are sugar, white flours, processed food, overeating or bad eating.
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Daily Tip:

Get a heart rate monitor. A chest strap seems to be more accurate than just the watch alone. Get one that allows you set your target heart rate zone. That way, when you drop below or rise above the heart rate you should be at (55-70% of max for the best fat burning) it beeps at you and you know to adjust. It is VERY helpful to make sure you are exercising at the proper intensity to burn fat. My target zone is 134-144 beats per minute. I'm 44 years old.
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Daily Thought:

America is fixated on body image, to the point of obsession. That is wrong. However, it's just as wrong to simply not care that much for the body God gave you. The right balance is found in moderation, self discipline and understanding that good fitness allows you to use your body to do God's work, serve others and be an example to those around you.
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We're In This Together


If you are joining me, email and let me know (brent@brentriggs.com). I'll put the list here, and update your progress whenever you send it to me. Will you join me?
  • Paula, age 55 wants to lose 50 pounds...
  • Maria P.: went to Weight Watchers last night and I lost 3.4 lbs. I am very HAPPY!!! That makes 10 lbs in 2 weeks. I am going to the gym tonight and on Sunday.
  • Laurel, age 48, needs to lose 100 lbs. She said: Yikes, I don't even want to print that, thought about putting 50, and then saying I wanted to lose 50 more. But I'm trying to be real here.
  • Lauri is only 13 and said: But I'm 20 pounds overweight and working on getting it off. I'm doing it the healthy way and being monitored closesly by a nutritionist.
  • Kathleen said: I’m with you Brent. My goal is to lose 25 pounds. I started January 6 at 157. We are taking our little one to Disneyland this summer and I HAVE to be able to run around and have a good time with her!
  • Kristina, who has some major back problems, wrote: I would like to join you in your getting fit. I am hoping to lose about 50 lbs. As far as the working out I am not able to do that because of my back but I am trying to be more active and I can eat healthy.
  • Erin emailed me: It is time for me to get my butt in gear and lose the baby weight! I have no interest in crash dieting. I want to live a healthy lifestyle and be a good role model to my children. I am 32 years old and I would like to lose 25 pounds. I am excited about my goal and would love to work along with you!
  • From Beth: I'm 26 years old (down 50 lbs since I had my son Feb 2009), working on losing 30-40 more.
  • Luci wants to join us: I will be 55 at the end of October. I have slowly gained weight over the past 10 years and would like to lose at least 20 pounds.
  • Jennifer P: I want to lose 50 lbs also; working hard at it... cardio and weights 6 days a week.
  • Meg: I am 30 and I want to lose 45 to 50 lbs. My blog is www.megsminutes.blogspot.com.
  • Roy A. wrote: I started the first of the year with losing some weight. I would love to lose 25lbs. Just by eating healthier.
  • How about you? (if I've missed anyone, let me know; you can join us ANY time!)
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Here is an assortment of health and fitness lists that is growing each day. Please read, enjoy and add your own entries:
  • Reasons to Eat Right, Get Fit and Be Healthy
  • Exercise & Fitness Tips
  • Healthy Weight Loss & Diet Tips
  • Great Diet & Exercise Blogs
Read all the lists here...

15 comments:

Mom to 9 Blessings! said...

Praying over Avalon and her parents - may Gods strength be theirs! Praying for His peace to overcome them as they make this horrible decision.

Praying over Abby!

Praying for you both too!

Praying for Brent as you continue on this journey of feeling the best while looking your best from the inside out!

Love you all!
Jill

emsres said...

Praising God and giving thanks for Abby's reduced pressure. Keeping Avalon and her family in my prayers as well.

Kristin said...

I am doing the happy dance for Abby! That is absolutely wonderful news, Michelle!

Anonymous said...

So happy to hear the good news about Abby's low pressure! Wheeeeeee! :D

Bobbie Bailey said...

Oh, I'm feeling so badly after reading your post Michelle. My heart is absolutely aching (I can feel it ache!) for both precious little girls. We need Jesus to heal both Avalon & Abby so much!
May it be His will to do so. I will be praying for Avalon and her brave paretns as I am praying for Abby and her wonderful paretnts.

God bless you,
Bobbie B.

Debbie said...

So thankful for some improvement in Abby. However, my heart breaks for Avalon and her family. I will be praying and tweeting to get others praying too.

Love,
Debbie

Cori said...

SO glad Abby is getting some much needed pain relief!! Praying she back to herself soon!!

Debi said...

Praying for amazing Abby and Warrior Princess Avalon and your family. I pray for healing for these wonderful girls and grace and strength and hope for both of your families.
Love and hugs and prayers,
Debi

Michelle said...

my pressures were in the high 40s before my shunt - so glad to hear Abby's down to just 16 without one!

Topamax didn't do anything for me except make me throw up. glad Abby is at least able to take it.

- michelle

Anonymous said...

Our beautiful daughter has suffered from daily severe migraines for unknown reason. She takes a large dose of topomax and it took her 2-3 months before the drug helped her. She studdered for months and had difficulty remembering words. She has a degree from Carolina in English Literature so the stumbling about trying to remember words alond with the studder was difficulf for all of us. She know has her headaches tolerable with the drug but at night when she gets tired the words again don't want to make sense. Her dose is increased as her headaches increase and we again go thru the studder and forgetfullness until she adjusts to the dose. But once the dose is accepted by her body she is her old self. It appears to be an ugly drug but does control her migraines so she can cope and work. We've learned to live with the side effects to have a decent quality of life. I hope as Abby's body gets used to the high dose she in turn will find her personality come back. If you have any questions about the drugs symptoms please feel free to contact me.
Terry

Terry said...

Our beautiful daughter has suffered from daily severe migraines for unknown reason. She takes a large dose of topomax and it took her 2-3 months before the drug helped her. She studdered for months and had difficulty remembering words. She has a degree from Carolina in English Literature so the stumbling about trying to remember words alond with the studder was difficulf for all of us. She know has her headaches tolerable with the drug but at night when she gets tired the words again don't want to make sense. Her dose is increased as her headaches increase and we again go thru the studder and forgetfullness until she adjusts to the dose. But once the dose is accepted by her body she is her old self. It appears to be an ugly drug but does control her migraines so she can cope and work. We've learned to live with the side effects to have a decent quality of life. I hope as Abby's body gets used to the high dose she in turn will find her personality come back. If you have any questions about the drugs symptoms please feel free to contact me.
Terry

Terry said...

Its Terry again and I forgot to tell you that we call the drug "topa stupid" since it makes our daughter unable to talk with her usually flowing train of thought. It is specially apparant after a long difficult day at work and while having a conversation with her she can't think of the words needed to complete a train of thought. But to have her migraines a 5 and not a 12 its worth the inconvience of not finding the right words to talk.

Michelle said...

Hi there!
This message is for Michelle. :) Just wanted to thank you for your address- I did remove it from my comments section, so you can rest easy. :) I'm excited about getting a little care package out to Ms. Abby! :) So glad to hear her pressure levels are good! Praying for all of you guys!

With Love,
Michelle

lisasmith said...

praying for both of these precious ones. Thanking God that Abby's report was good and asking God to restore her vibrant personality and health completely.

will visit and pray for Avalon right now. i know children touch a special place in God's heart.

Jenna said...

I have been reading your blog and praying for Abby for about a year now, but have never commented or emailed. I too taken Topomax to control almost daily migraines and the side effects were definitely difficult adjust to. It usually takes at least 2-3 weeks for my body to adjust to the medication or increase in dosage before I start to notice a decline in the side effects. It's very difficult to be a high school teacher on this medication! The other side effects I really struggle with are the tingling & numbness and the forgetfulness. It also makes food & drinks taste different. I hope the medicine works and she begins to see some relief from the side effects.