For an update on Abby's intracranial pressure and our thoughts on brain surgery click here.
To clarify a few things about the above mentioned post, we were not offended in the slightest by the comments from people who disagree with us. We welcome different opinions and experience. We have learned a lot from the comments and suggestions from readers, even if they appear to be critical (which we don't think they are... we don't publish the truly ugly or ungraciously critical comments).
I am grateful you love Abby enough to want her pain to stop immediately. I wish that was possible but since it is not, we covet your prayers. Thank you for loving Abby and for praying for our family.
Abby's eye appointment went great. He saw no signs her vision is being damaged. Praise God! We even get to wait 8 weeks before we have to return. We have been going to long doctors appointments every 2-3 days for a while now, with no end in sight, so we are very thankful to get a bit of a break from the eye doctor.
Today Abby will get another spinal tap, NOT because she is complaining about headaches but because it is time for her to get chemo injected into her spinal fluid. Oh how I wish we could wait a few days until her headaches return to do the spinal tap. But then I am praying her headaches stay away for good and we are praying that her cancer cells are destroyed so maybe this is best after all.
Over the last week Abby's breathing has gotten better, not perfect but better. She is sleeping quieter and her breathing is not as labored. In the past Abby has had more trouble breathing during and after she is sedated for procedures but the last two spinal taps have been fine.
I really think one of the chemos (Vincristine) she gets once a month is causing the problems with her breathing. Abby will get this chemo again tomorrow. This is one time I would LOVE to be wrong. Abby has to get this medication, so I am praying it is not the cause of the problems with her airway. I hope and pray I am wrong about this one.
For those who are curious, Abby's doctor has ordered a ENT consult, a sleep study, a Neurology consult, pain management consult and a headache clinic consult. All reasonable requests but just looking at that list makes me tired.
Garrett looked pretty tired tonight. He was still very sweet to Abby but I know it was an effort to play with her. It is the oddest experience to watch your 17 year old son move slowly across the room with a walker. I am thrilled he can but it is still hard to think about how many injuries he has sustained. He is not allowed to put any pressure on one of his legs and his neck, shoulder and back are injured so moving short distances is quite a chore.
Abby has been through hundreds of procedures and knows the drill...
... it's all business for her as she makes notes and documents results...
... WHAT-e-v-e-rrrrrrr!!!! Time to have some fun!
Let's get this party s-t-a-r-t-e-d!!!!!!!!!!!!!!!