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Jan 12, 2010

Update from the Trenches

From Michelle:

No happy pictures or funny stories tonight. Just a plea for prayers for Abby. Has anything changed? No, not really. We are just tired. Tired of seeing Abby hurting and watching her deal with things that no child should ever have to. Most importantly, ABBY is tired of hurting.

She's having bad headaches again, and you can tell from this photo that it is wearing her out:



We are quickly lining up and completing tasks that were ordered by her doctor.
  • Topamax (drug for intracranial hypertension) is at its maximum recommended dose and Diamox (another drug for intracranial hypertension) was increased today.
  • She saw the Ears, Nose Throat doctor today and he wants Abby to have a sleep study. This is something I am very thankful is being done before we make any decisions about surgery.
  • Abby's sleep study will be on Thursday.
  • Abby will see the Neurologist next week.
While I am amazed at how quickly everything was arranged, I am ready for this chapter to be over.

Abby's headaches are back and she wants to get a lumbar puncture (spinal tap) tomorrow. The on-call doctor increased her pain medication and she is finally asleep. Since Abby is still tolerating the medications, her doctors want to try to "tweak" the doses, to see if they can make them work. I am fine with that IF they will get her some pain relief while they are working on it.

I am praying we can arrange second opinion very soon. Does surgery scare me? Of course it does but if the medications won't work then something has to be done.

Please pray for wisdom for the doctors and for Brent and I, for Abby's pressures to go down, the cancer cells to be destroyed and for her to have the strength to handle this fight. Please also pray that Abby would be protected from any permanent damage from the elevated pressures.

Other Update Stuff


Garrett is handling his injuries amazingly well. At seventeen, he is already mature enough to do everything the doctors, physical therapist and occupational therapist ask him to do. He is determined to work hard and do everything for himself that he can safely accomplish. He is thankful he is alive, as are we. Thank you for praying for Garrett.

While Brent would never ask for himself, I would appreciate your prayers for him. He pulled something in his back and is in a lot of pain. He doesn't complain and most of our kids don't even know he is hurt. He just keeps doing what needs to be done for his family. He is a great father and husband. I wish I could do more to make things easier for him.

27 comments:

Kelli said...

Making a plea on behalf of your family right now. I am sorry to hear about Brent's injury...I know pulled/torn muscles very well and I'm dealing with it even as we speak (in a neck brace). It is miserable and I hope he heals up asap. So glad to hear that Garrett is doing ok considering the circumstances. God bless him with more strength each and every day. I am begging God to give Abby some relief...I just can't stand that she's suffering so much...my heart is torn for her. I am praying. And please thank her for the postcard...made my day.

Love you all,

Kelli

Bobbie B. said...

Michelle, stay strong. The Lord is your strength. My prayers are continually going up for Abby and the rest of you who take care of her and love her. Will pray for Brent's back problems, too. I so admire you as one mom to another.
He will never leave you nor forsake you.

Hugs to Abby,
Bobbie B.

OneSmallWish said...

Unreal. This poor child. She has endured so much, I pray they find a better dose for her that she does not get these headaches anymore. Wish I lived near you to help out.

Alex and Sam said...

keeping you all in my thought and prayers...

jody said...

I have been following your blog for months now and praying for your family. We have children around the same age. Just know that you are being prayed for, especially when you are so very tired and needed it most!

Mom to 9 Blessings! said...

My heart cries out to God on your behalf Michelle and Brent. Praying over all of you now. Knowing God's comfort and peace are your strength!

Love you all!
Jill

Courtney Kay said...

Still sending much love and prayers to you all... Abby is so amazing!

Pam, mom, honey, said...

michelle, you are a amazing woman and I am praying for your family. Praying for strength. Praying for healing for all of you. Praying for rest and comfort

steffenboysmom said...

Love you guys!

whenpigsfly said...

Praying everything for you as you have asked it and MORE! We love you guys so much!
Linda and crew

Debbie said...

Prayers coming your way!

Misty Rice said...

Ugh...breaks my heart. I hate hearing this for her (and you). I'm always praying!!!

Liz F said...

We will definitely pray for all of these specific intentions and your whole family. I bet you are weary! God bless you all! p.s. Even sick with horrid headaches, Abby is gorgeous!

Gardenia said...

Dear God, send your cloak of comfort over Abby and Garrett and michelle and Brent, and their whole family. Send them the perseverence they need, and peace too!

Nina said...

Abby has and will continue to remain in my prayers. I can only imagine how tired and weary you all are, I see it in Abby's eyes and I'm sure as her parents it's a very difficult thing to watch. I'll be praying specifically as you requested for Abby, Garrett and Brent, as well as you Michelle. Thanking Him for quickly arranging things and for the promise that He never leaves us. Praying you all feel His presence today...

Holly said...

I've been praying for Abby for almost a year, when I first caught your blog. Will continue to do so. Just a word on the Topomax, which you may already know. I was prescribed this to help with vertigo and headaches from Meniere's. Topomax was first introduced as a weightloss drug--which I found out only after I stopped taking due to side effects. For me, my appetite went away AND whenever I would drink something carbonated it would taste flat and then a few mintues later a burning sensation would explode in my mouth--like a chemical burn not a fizzy drink burn. I guess that's why it worked as a weight loss drug. Just something to watch for with Abby. I came off it because I didn't particularly like those side effects and it wasn't helping with the vertigo.
I pray that things will settle down with your family and that God will move in a mighty way.

Sonia said...

Praying for you all, for the specific requests you listed, and for strength, for God to supernaturally undergird you and give you energy for this fight. You need almost as much as Abby does.

Sonia

Tribulation said...

michelle,

Take an old sock *old but not holey* fill it with uncooked rice and tie or sew the end of the sock. we usually just tie it. pop the sock in the microwave for 20 to 30 seconds. place on sore area on top of shirt to prevent accidental burns. reheat as needed.

this helped when i had back labor with our first child. it might help brents back a little.

Tina Thompson

Debi said...

Riggs family,
Thanks for taking the time to update us.
Praying for all your requests for your family. Praying especially that sweet Abby's pressure headaches would go away. Good to hear how quickly the appointments for her were scheduled. Praying that you would get the answers that you need.
Thankful for the good report on Garrett. I continue to pray that God would grant him daily strength and grace.
Praying for a quick healing and strength for Brent. Praying for you, Michelle, that God would give you daily strength and order your footsteps.
Love and hugs and prayers,
Debi

Anonymous said...

Riggs Family:
Praying for strength for all of you always.Abby has been through so much and I will be praying that the doctors make the best decisions for her so she can better and feel better.Praying that when all of the treatments are over that the cancer will be gone too.Praying for Brad to have some relief with the back pain and for Garrett to continue to heal and for his therapy to help him to a full recovery.
Leveta

Are These Kids All Yours? said...

Storming the Heavens on your behalf!!!! Wisdom, healing, and STRENGTH to get through! I don't know how you do it, except I know the LOVE you have & the HOPE you have is TRUE! :)

Ann Brown said...

Praying for ALL of you! For Abby, of course, and Garrett (God bless his determination!), and Brent's back, and you Michelle, for strength and peace, and for the other children, too, because I know how very hard on them this all is.

Many many prayers -- lifting you all up.

Ann (Elke's mom)

kristi.guillory said...

awww poor sweet abby...i really hope she starts feeling better soon!!

on a completely different note, i FINALLY wrote my first blog, hope you'll read it and not think it sounds too selfish...

thanks!!

Kat said...

Oh...I'm so sorry your going through this. My heart aches for you guys. We will continue to pray for Abby.

Vic said...

Hello,

I have been praying for your family for many months now. I continue to pray for complete and total healing with your family and your children. Today I come with a request for intercession of a prayer group on my campus back at school. Roberts Wesleyan College. If you could please post this to a blog or encourage others to interceed satan is really trying to tear this action of prayer down in a fast manner and I believe it is because God has a huge plan and revival for our campus.

http://throughhimallthingsarepossible.blogspot.com/2010/01/bump-prayer-intercession.html

Amanda said...

I work at a headache clinic and Topamax is our #1 prescribed drug and has the most success on average. I'm praying it will help with Abby's headaches.

Shari said...

Thank you for taking the time to update. Our family prays for your family each day. Hang in there and we love you guys.