Garrett stopped taking his pain medication on his own before the doctor suggested he stop. He has found some creative ways to be helpful around the house and has been wonderful with Abby, Landis and Hannah. Abby especially loves to camp out in Garrett's room. Garrett is Abby's hero and truth be told, she is his.
Abby is doing about the same. Her skin color looks awful (pale yellow). The Diamox seems to be hitting her pretty hard again. Diamox, the medication for her intercranial hypertension, can be tough on your liver and bone marrow. Hopefully her blood work will be in the safe range to continue with her current medication.
Abby is complaining about headaches again but they don't seem to be as bad as before. When she is VERY anemic, she gets headaches because there aren't enough red blood cells to carry the normal amounts of oxygen to her brain. This is easily fixed with a blood transfusion. As weird as it sounds, I hope that is causing her headaches.
She is still pretty tired but is gradually improving. She was able to go to school today. She wasn't her normal confident self but she was there and that is a start. Sometimes just showing up takes all the courage she can muster but she does it and is very proud of herself when she is through. Today she was more nervous about going to Pre-K than she is before spinal taps. It is a strange world our family has been thrust into.
Tomorrow (Wednesday) Abby has a oncology appointment, for IV chemo and blood work. Hopefully she will be done in time to go to school. Abby needs her world to settle down and for life to become routine again.
Pray requests for today:
- her energy would return
- protection from damaging side effects caused by the medication she needs
- the remaining cancer cells would be destroyed
- wisdom for us and the doctors as we make decisions about Garrett and Abby.
- Garrett's bones would heal and that he would get the Eagle Scout rank he has been working so hard for.