He did a sweat test on Abby to test for cystic fibrosis, a chest xray and reviewed her sleep study. The sweat test was at the highest edge of normal. I have read that there are times when a child with milder cystic fibrosis can test high normal. Her values maybe high because of one of her medications. I know there are several mom's with CF kids who are praying for Abby. Any thoughts?
Does Abby have symptoms of milder cystic fibrosis? Sure but they can be caused by many other things. Am I worried about cystic fibrosis? Honestly, no. Her new doctor is watching her closely and will let us know when it is time to be concerned. We are dealing with enough "real" things without worrying about what ifs. God is watching over our precious daughter, loves her completely and will never leave her. God is always good.
Abby's sleep study showed 30+ episodes of apnea during the night. One time she quit breathing for over 30 seconds and her oxygen dropped significantly (70s).
He said that he hopes her central apnea will resolve when she is finished with chemo but he gently warned that it may be from brain damage from the chemo. Not what I wanted to hear but I appreciate the warning.
He is giving Abby a rescue inhaler, an inhaled steroid and putting her on a pulse/ox at night. The pulse/ox will monitor the amount of oxygen in her blood and alert us if it drops to dangerous levels. I will feel much better when our insurance approves her pulse/ox.
We have had a lot to think about and process lately. Hopefully, we will be able to step back and enjoy our weekend with our kids.
Thanks for all of your encouraging comments and prayers.
Abby dancing with Hannah and Kristin at the art show.