Abby is doing okay today but is a little teary and tired. One of the tougher things about hospital stays is that medical conversations happen in the range of little ears. Most five year old's wouldn't understand half of what we were saying but Abby is one medically savvy little gal. I need to find some crafts or something to distract her tomorrow.
They are having me do chest percussion to help her cough up some of the thick muck in her lungs. Basically, I use my hand to thump on her chest and back. From what I learned so far I think am supposed to do it for about 45 minutes to an hour. Abby is cooperating but the look on her face tells us that she thinks we have lost our minds. Since her bones are brittle from the chemo, I am thinking she might be right. They make a vest that would be a little gentler but we will have to wait for a diagnosis and insurance approval for that.
We met with the new pulmonologist today. He was nice but I can't wait for Dr. Reyes to get back in town. He confirmed the asthma diagnosis and wanted to run some more tests before diagnosing Abby with cystic fibrosis. I love that they are confirming tests before they stick her with that awful label.
Abby will stay in the hospital until after they run a test tomorrow. The gold standard test for cystic fibrosis a sweat test. They look to see how high the salt concentration is in your sweat.
A result of 60 or higher means you have cystic fibrosis, 40-59 means you might have it and if you are lower than 40 you do not have the disease. A week ago Abby's sweat test score was 66. Not good at all.
The plan was to look at her medications to see if any would throw off the test, do the bronchoscopy and then redo the sweat test. If Abby is in the borderline group they will pursue genetic testing.
I am praying for clear answers tomorrow (Wednesday), strength for Abby and wisdom for all involved. It may take a few days to get the results but I am praying we know tomorrow. I will post when we do.
Thank you for all of your sweet messages to Abby. You made her smile on a pretty rough day. You are such a blessing to Abby and the rest of our family.