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Apr 2, 2010

Abby Update Friday Night - NO CF

From Michelle:

I am sorry it has taken me this long to update you all. It is very hard to know what to write. We are praising God for the great news we received but still begging Him to continue to heal Abby.

Confusing? Yep.

The pulmonologist said that the sweat test showed she doesn't have cystic fibrosis. At this point there is only a 2 % chance she will later be diagnosed with it. Praise God! BUT he said that he will treat her just like she has cystic fibrosis. Abby's lungs are a mess, she has super thick mucus like kids with CF and her immune system is being kept low on purpose (her cancer mimics white blood cells). Abby's lungs are filled with things that wouldn't hurt most people but is dangerous for someone on chemo.

Will Abby's long term prognosis be better since she doesn't have CF? Yes, most likely. But we have been warned that some of the damage being done to her may cause life long problems.

One of her chemo drugs (Methotrexate) is notoriously bad on lungs and she needs to take it weekly until November. All of the kids who I know have been taken off of this drug early have relapsed. It normally takes 6 months for immune systems to recover after chemo is stopped.

So, am I praising God that Abby doesn't have cystic fibrosis? Absolutely. But Abby's doctor is still very concerned so I will keep praying for complete healing.

Thank you for standing along beside us and praying for Abby.
Abby celebrated Halina's birthday today. Our family and the Lentz's went to eat Ethiopian food and American cupcakes!
Can you tell Abby has that "look Dad I'm smiling for you even
though I feel terrible" kind of thing going?

24 comments:

Michelle said...

PRAISE GOD FOR NO CF!!!
LOVE, LOVE, LOVE, Abby in this picture!
She is SO inspiring!
Love, Michelle Mann

Mom to 9 Blessings! said...

Michelle - what wonderful news! Praising God that it is NOT CF!

What an adorable photo despite her not feeling well!

Thanks for the update and praying you all have a blessed Easter together!

Love and blessings,
Jill

Groettum Family said...

Woooohoooo! So glad that darn sweat test came back negative!

Anonymous said...

That is good news, I know it has been a hard week for you all and pray that Easter Weekend strenthens y'all reknewed hope for a Healthy Abby when all the treatments are done. God Bless

Tracey's Life said...

Glad the news is good. I will continue to keep Abby and your family in my prayers. It amazes me that sweet Abby is always smiling no matter what is going on. she is truly a special gift from God and I am glad that she is yours.

Wishing you a Healthy and wonderful Easter.

Debi said...

Thanks for taking the time to post an update. Still praying for your family and Abby's healing in her lungs and everywhere else.
Glad that you had a fun night out celebrating Halina's birthday. What a precious little girl.
Love and hugs and prayers,
Debi

Debi said...

Thanks for taking the time to post an update. Still praying for your family and Abby's healing in her lungs and everywhere else.
Glad that you had a fun night out celebrating Halina's birthday. What a precious little girl.
Love and hugs and prayers,
Debi

Kelli said...

Oh thank the Lord!!! What a relief that she doesn't have CF. She has enough on her plate, by a MILE! Still praying and thinking of your sweet girl! She's a hero!!!

Courtney Kay said...

Abby YOU are amazing!

Kat said...

Poor sweetheart! So pretty, even in pain. Praying!

Cathy said...

Bless her sweet, precious heart. She is beautiful. Praying for her lungs to clear and for her healing ~ We love you, dear Abby.

Trennia said...

Glad test came back neg. for CF
Happy Easter to you Abby, and all of you!

Debbie said...

Michele, I'm so glad to read this latest news. Praise the Lord. Sending hugs to you today.

Happy Easter,
Debbie

Debbie said...

Oh Michelle, I started crying tears of pure joy for you all that Abby does not have CF. Praying for complete healing in all areas.

Manic Mother said...

Yay! That is great news!

Lara said...

I'm so glad the CF test was negative! You are in my thoughts!

Thanks for following on FF, I'm following back!!

Nati @ I will praise Him said...

I'm so glad that Abby doesn't have CF! But at the same time it really "stinks" that she has to be treated like she does.

I've taken MTX a little over a year before I discontinued it a few weeks ago and it was terrible on my lungs. I feel so bad for Abby knowing that it's not the only thing she's taking and how much discomfort/pain she must be in. Praying for you guys!

steffenboysmom said...

Good news, yes. Exhausting, Extremely! Is Abby worth it? Absolutely!!! We love you Abb's and pray for you & your family!

If God told you that you would have to go through this with her, would you still have adopted her? After watching you through all this, I'm pretty sure your answer would be yes. She is so blessed to have you as her family!

Nora said...

Thank you for the update and so thankful Abby doesn't have CF. We'll keep praying for the other concerns you have for Abby. The picture is precious and priceless. Praying for you all.

Nora

Ann Brown said...

Yay! Praise God!

and Happy Easter!

Now we just have to get those little lungs in shape....

Ann

TheSooner7 said...

Praying for sweet Abby! She has great parents who love her and God so dearly...what a blessed little girl :) I love the Lentz's too, amazing family :) Praying for your whole family continually.

cosby2 said...

Praising God that Abby's CF test was negative. She is a precious child and so blessed to have a mother like you. I will continue to pray for her lungs to heal. I can't wait for that Chemo Countdown to be over with. Also praying for God to give you strength, patience, courage, and peace. Because He lives...we can face tomorrow.

Anonymous said...

I just wanted to come and make another comment to say how BEAUTIFUL your children are! I am also so glad to see how long Abby's hair has gotten as I remember you saying she couldn't wait for it to grow back. She is gorgeous regardless but her hair is SO pretty! I wish All children were as loved as yours are. Thank heaven for you guys. I'll continue to pray for sweet adorable Abby. Love,

The Gonzales Family
Texas

Tree said...

Thank the Lord for no CF! Prayers for your sweet Abby!! She is just beautiful.