Thank you for praying while we were in the midst of the storm. I used to love storms but after all of the drama we have been through with Abby, I crave peace and calm. Please pray for the families of the people who lost their lives in the tornado tonight.
The storms have passed, our family is together again but we are still without power. Abby's oxygen monitor has been alarming off and on for the last few nights. With the power off, we can't monitor Abby's oxygenation while she sleeps (battery will only last a little while). I would feel more comfortable having the monitor on but I trust God to watch over Abby.
As I finished typing the last sentence our power came back on. God is so good.
How is Abby really doing? That is a tough question. Her neurologist increased a couple of her medications so she is very tired and pushing herself hard to do the things she wants to do.
Abby is complicated medically. Her team of doctors have worked incredibly hard to take care of her. Unfortunately, mistakes have been made. Please pray for us as we deal with the errors and work with her doctors to prevent them from occurring again. Please pray for wisdom and healing as we deal with this issue.
Abby has averaged going to school one day a week this year. She has a lot of work to do in order to catch up and no energy to do it. Abby's white blood cell count has been high enough to go to school for a week now. Last week was the only week this year where Abby was able to attend school every single day. Abby was thrilled to get to go to school like the other kids. There are only a few days left in this school year. I would love for her to get to go to them all.