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Jun 1, 2010

Abby Update, Photos, Auctions & Radio Show

From Brent

If you didn't get a chance to see the half dozen adoption-auction-donations we post over the weekend, check them out here. I'll leave them up for the rest of today.

Radio Show

Tonight on the radio show, I'm joined by Laurel Diacogiannis and we'll be talking about teens: how to raise them with a passion for faith and values, and how to parent them through times of trouble and difficulty.

We have seven kids, 4 of them teens or older; Laurel has a dozen kids with a truckload of them teen or old too. Should be some interesting stories and advice.

This would be a good time to call in with your questions if you have teens or are moving towards those teen years. We'll extend to multiple nights on this topic if there is enough interest. (www.themindofbrent.com)

From Michelle - Abby Update

Thank you for praying for Abby yesterday. It was a long and tiring day followed by an nervous night. Our trip to ER took over 7 hours. Abby was a sweetheart but I know she would have rather been home swimming with Hannah and Landis.

Abby's self diagnosis before we got to ER was, "Mommy, I am very, very sick." That is a phrase she almost never, ever utters. Let me tell you, it got our attention. Her fever won her an automatic ER trip but I would have called to doctor even without the temp.

ER drew blood work, did a chest x-ray and a quick exam... all very standard for cancer kids when they run a fever. The chest x-ray showed an infection in Abby's lungs and she has an ear infection; not surprising when you can hear her gurgling, gravel-y cough clear across the house.

Because Abby's white blood cell count was so high, they let her go home on oral antibiotics. Do I think that will be enough to lick this??? Uhh, no.

Last night I slept with Abby. Not something I normally do but I wanted to be close if she needed me. Really "sleep" is something only one of us did. Sleeping with Abby is like sleeping in a gigantic bowl of Rice Krispies. Her lungs crackle and pop all night as they struggled to take in oxygen needed. Wheezing and junky I am sort of used to. The crackling stressed me out.

First thing this morning, I started making phone calls to the experts. I will be picking up the x-ray soon and taking Abby to see her pulmonologist, one of my favorite doctors on the planet. I trust him completely. I would dearly love to hear him say "the ER doctor is wrong, Abby's lungs are perfectly healthy, stop worrying".

Remember when I wrote about Abby's CO2 and how she stops breathing at night to try to correct it? At ER it was worse than it was last week. Not good. Her medications for her intracranial pressure make her CO2 dangerously low and respiratory problems can make it even lower as Abby breaths quickly because of airway anxiety. Bad combination. I have a call into the Neurologist about this one. He just adjusted the medications on Friday but it wasn't enough.

I will update you when we know more. Thanks for praying.

Photos From Brent

Thought you might enjoy some spring flower photos I snapped in our yard today. I love photos of plants and flowers but can't tell you the name of half of them. I just water them, pull weeds and enjoy them.




16 comments:

Everyday Kathy said...

So sorry to hear about Abby. My prayers are yours! I do hope everything gets resolved quickly and everyone is getting good sleep soon.

Love the hydrangea photos... my blog header is a picture of one!

Sweet Joni said...

Abby will be OK, once again going through this... faith in our Lord that he comforts her & you so she can rest & heal. =)

WOW!!! Those flowers are seriously IN your yard??? I'd be outside all day just sitting & looking at them! =) They are certainly beautiful!!!

Hugs & Love to you all,
~Joni

Mom to 9 Blessings! said...

Thanks for the update praying with you for Abby!

Love the flower shots!

Blessings,
Jill

Liz said...

hydrangea, rose, hibiscus, hydrangea.

I appreciate your willingness to not only live the hard life with appointments, ER visits, no sleep, anxiety - but to take it one step further, think about it, write about it, and not avoid the crises while allowing others to grow in it. This is inspirational to me. I remain humbled by your struggles, by Abby's life!

Liz

jenn said...

i will be adding abby to our family prayer list!!!
praying that god's peace be with you all!

and

those flowers are gorgeous =)

Debbie said...

Gosh, I can't imagine how hard it must be to have the ups and downs of a child who is sick. Abby is such a little trooper though.

The flowers are simply beautiful. I think I need to take some time to read the photo e-book I purchased from you as those shots are fabulous.

I continue to pray for Abby and your family.

Blessings and love,
Debbie

Nora said...

Michelle--

I'm so sorry to hear Abby is struggling again. I will pray for her and you as you work to get the answers from her doctors.

Brent--

The flowers took my breath away--they are beautiful--Hydrangea, Rose and ?
God's handiwork is amazing. I can't wait to see what heaven looks like!

Nora

Terri said...

Sweet Abby is always on my mind.
((Hugs to you and your family))

Heather said...

It just breaks my heart to hear that she is sick again. Prayers coming to you all for fast healing.

Your hydrangeas are beautiful. I have tried growing them but it just doesn't work out well for me.

Ann said...

Michelle and Brent - the first thing that comes to mind, is "I don't know how you do it", but as the mom of a medically fragile child, I know that you do it because you have to. You love your child more than life itself and you will go to the ends of the earth for her. But, I also know how completely and utterly exhausted you must be. I so wish Abby could catch a break. You all are in my thoughts and prayers.

Marielle said...

Praying for Abby
Brent I love the photo's you shared. Is it okay to print them and hang them on the wall or use one of them in my scrapbook.
They flowers show the greatnes of our God, incrible how beautiful he made just the flowers

LaVon Baker said...

Oh, dear Lord Jesus, I don't know why this sweet family and precious Abby are being asked to endure this gut wrenching illness for so long, but I do know that thousands have been touched by their faith in You regardless of their circumstances and pain. Forgive me for the days that I don't read this blog because I just can't bear to think about the pain they're going through. How selfish of me. My heart breaks. Jesus, in Matthew, I read that all you had to do was give the command and the servant was healed:
Matthew 8:8
But the officer said, “Lord, I am not worthy to have you come into my home. Just say the word from where you are, and my servant will be healed.
Matthew 8:13
Then Jesus said to the Roman officer, “Go back home. Because you believed, it has happened.” And the young servant was healed that same hour.

I pray for this exact same healing for sweet Abby. I cry out to you, "Just say the word, Jesus!" And even though I believe with every fiber of my being, our ultimate prayer is that Your will be done. We trust You and regardless of what we see or understand, You Are Good, You Are God and I/we praise You. Be glorified, Sweet Jesus. Amen.

Susan said...

What beautiful flowers and a very inspirational blog. Thank you for letting me visit.
http://amazingcouponandiscountdeals.blogspot.com

Shannon said...

Praying for you guys! I highlighted Abby for prayer on my blog today too...
Shannon

Terri Green said...

Hi Michele,
Praying that Abby's pulmo appt went well and that she starts to respond to the oral antibiotics without having to be admitted! Jesse just got over the crud...actually he had para-flu! Jesse's pulmo said that it is going around our community(Baltimore) and is very unusual for this time a year. They had 5 admissions the same weekend that Jesse was admitted with it. Tell Brent that we love all of the pics!!

Love in Christ!
Terri, Jesse and family
www.caringbridge.org/visit/jessegreen

Mama D.'s Dozen said...

Purple Hydrangeas are my absolutely most favorite flower, I have several in my front yard.

Did you know that you can add nutrients to the soil to make them bloom in other colors? Crazy how God created that part of it.

Beautiful pics!!!

Laurel :)