Thank you for praying for Abby! Last night was a long, stressful night. Abby's lungs are filled with very thick mucus. It is ALWAYS present. During the day, she has a hard time coughing it up. When she is asleep, it collects in her upper airway, partially occluding it. It is a noisy, gurgling, wheezing mess. We tried for two hours last night to fix her breathing/airway at home but finally gave up (after consulting with her doctor).
We are at the beginning of a new learning curve, trying to learn new ways to care for Abby. Medications to thin secretions would increase her intracranial pressure. So they are out.
The ER doctor took time to brain storm to find ways to help Abby at home. Most of the things that might help her are tricks he has learned caring for kids with Cystic Fibrosis. Abby has not been diagnosed with that but it is a little unsettling to hear how closely her lungs sound like a CF-er.
Fortunately, we were able to go home (after spending the night in ER). Today is all about Hannah and her dance recital debut. I am unbelievably thankful that we are all going to be there for her.
I only got 2 hours of sleep today. Thankfully I feel pretty good. Please pray that tonight is a positive experience for Hannah, Abby's lungs will behave and I will have the energy to enjoy the experience.
Thanks for praying.