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Jun 5, 2010

Abby Update

From Michelle:

Thank you for praying for Abby! Last night was a long, stressful night. Abby's lungs are filled with very thick mucus. It is ALWAYS present. During the day, she has a hard time coughing it up. When she is asleep, it collects in her upper airway, partially occluding it. It is a noisy, gurgling, wheezing mess. We tried for two hours last night to fix her breathing/airway at home but finally gave up (after consulting with her doctor).

We are at the beginning of a new learning curve, trying to learn new ways to care for Abby. Medications to thin secretions would increase her intracranial pressure. So they are out.

The ER doctor took time to brain storm to find ways to help Abby at home. Most of the things that might help her are tricks he has learned caring for kids with Cystic Fibrosis. Abby has not been diagnosed with that but it is a little unsettling to hear how closely her lungs sound like a CF-er.

Fortunately, we were able to go home (after spending the night in ER). Today is all about Hannah and her dance recital debut. I am unbelievably thankful that we are all going to be there for her.

I only got 2 hours of sleep today. Thankfully I feel pretty good. Please pray that tonight is a positive experience for Hannah, Abby's lungs will behave and I will have the energy to enjoy the experience.

Thanks for praying.

16 comments:

Debbie said...

How is it coming on getting the vest for Abby? Let me know if I can do anything to help, k? We are heading to OH this week to see if hte surgeons there can help Chey's CF lung.

Love and prayers to you all,
Debbie

Kristina said...

Will continue to pray!

To Love Endlessly said...

we'll be praying. I'm so glad to hear that she is home and you're seeing some improvement. Just so much on your plate..enjoy that dance recital!

Are These Kids All Yours? said...

PRAYING! For strength, for family fun, for Hannah, and for healing for Abby!

Groettum Family said...

Have they had Abby try "The Vest?"
www.thevest.com

Maybe the shaking would knock that sticky mucus loose and you could use a "milder" medication to help with the thinning of the mucus, that might not increase her intercranial pressure?

Just an idea from a CF mom!

Groettum Family said...

Have they had Abby try "The Vest?"
www.thevest.com

Maybe the shaking would knock that sticky mucus loose and you could use a "milder" medication to help with the thinning of the mucus, that might not increase her intercranial pressure?

Just an idea from a CF mom!

Pattie said...

moght be off the wall here but maybe making her drink more water to help her natrually thin the mucus. Another thing is this patting over the back rib cage in a cup like postion with her laying face down (like her laying over your legs) and patting over the lungs (all over the lung area) for 10 min's after her breathing treatment. It works to loosen up gunk and makes it easier to cough it up. Just an off the wall post of something to try.

She is in our prayers always. Pray that you (Michelle) get's to enjoy Hannahs dance and then can come home and sleep for a little bit

Kat said...

We will continue to pray...always...

Faith, Hope, and Love said...

So happy that you are able to attend Hannah's dance recital!!!

Will be praying for your precious Abby!

Love and blessings,
Robin

Gena said...

Glad to hear it. I hope you enjoyed the evening and Get Some Rest!

Donna said...

Dear Brent, my heart so goes out to you, your family, and dear Abby. I pray you all have a good night's rest.

Caring for Dad with cancer during hospice was so unnerving especially when his breathing got so congested. You guys are so brave to go through all you have and I'm glad we can share in your journey just a little bit.

Donna @ Comin' Home

sarah bess said...

Aw, very glad you got to go home and that you can both be there for Hannah. will pray for a solution--supernatural, medical, or both--to Abby's mucus problem. Really feeling for you these past few days.

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Sweet Joni said...

Thankfully Abby didn't get admitted in hospital & hopeful that you all got to enjoy Hannah dance. I'm sure she was beautiful as you watched her perform her talent.

Am certain you get plenty of 'advice' for Abby's care... but here's what helps me since RX intake is limited:
*Drinking more water
*Massaging chest
*Decreasing salt intake
*Riding bicycle which loosens up mucus, helps breathing + Vitamin D from sun.
*Sleeping in a recliner during times of 'harder breathing' which helps keep broch tubes clear.
*And believe it or not, screaming with all I've got, of course outside :D Causes coughing which brings up the junk.

Curious if Abby uses a home nebulizer since inhalers aren't working, course the don't work for me either tho neb. does.

As always, in my prayers for Abby's health especially but for all your well beings. :)

Love & Hugs,
~Joni

Holly said...

Praying for you! We have never stopped praying for Abby!

Also, our little angel adopted from China in October was just diagnosed with retinoblastoma in both eyes last Tuesday. Would it be okay if I emailed you guys sometime? I would love to be able to ask questions to someone who has been through something like this. My email is hollygilliam@comcast.net. Thanks!

Nora said...

Glad to hear Hannah had a great dance recital--what kind of dance does she do?

How is Abby doing with the breathing issues and how is she doing in general? Hope you've gotten more sleep Michelle and everyone else is staying healthy.

You're in my thoughts and prayers.

Nora S.
CT